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UK: Miley vs Friends Life 2017, Appeal result 2019 'Appeal Court judge accepts good and bad days'

Discussion in 'General ME/CFS news' started by Wits_End, Mar 8, 2019.

  1. Wits_End

    Wits_End Senior Member (Voting Rights)

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    UK London
  2. AR68

    AR68 Senior Member (Voting Rights)

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    Haven't gone through this but this appears to be the original ruling from 2017: http://www.bailii.org/cgi-bin/format.cgi?doc=/ew/cases/EWHC/QB/2017/2415.html&query=(miley
     
  3. Hutan

    Hutan Moderator Staff Member

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  4. Lucibee

    Lucibee Senior Member (Voting Rights)

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    Dolphin, Hutan, rvallee and 2 others like this.
  5. Mithriel

    Mithriel Senior Member (Voting Rights)

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    I think the scepticism is in the way it is being reported. People with MS are allowed to go on holiday. They are treated as being "brave" if they try to lead as normal a life as possible.

    Saying a skiing holiday sounds like an active, energetic holiday. Reporting it by saying he struggled to accompany his wife who loves snow sports or that getting away from damp foggy Britain and lying in winter sunshine would give a different impression. Luckily the judge looked at the facts, someehting that is very rare for us. Just think about the way PDW or creepy crawly talks about CFS.
     
  6. AR68

    AR68 Senior Member (Voting Rights)

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    I've just started listening to the BBC Radio Bristol feature from yesterday which is mentioned elsewhere on this forum and *immediately* it starts with 'fatigue'. That's the problem. It's *always* about fatigue. That sets major, restricting boundaries for anything else that comes along. If you venture outside your home you are then well enough to work 9-5 five days a week.

    No matter how well intentioned any coverage is, focusing on fatigue will be problematic. There are many other symptoms that do not get as much coverage and fatigue is common to many illnesses.

    Campaigning and coverage needs to be more, and it's an overused word nowadays, 'nuanced'. It can be, like other conditions, fluctuating. That needs to be reflected more.
     

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