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The Neurological Alliance: [UK] General Election 2019, Our Neuro Pledge 2019

Discussion in 'General disability topics and advocacy' started by Andy, Nov 23, 2019.

  1. Andy

    Andy Committee Member

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    https://www.neural.org.uk/general-election-2019/
     
  2. ladycatlover

    ladycatlover Senior Member (Voting Rights)

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    No ME charities are listed as members.
     
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  3. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Sarah94 and Barry like this.
  4. rvallee

    rvallee Senior Member (Voting Rights)

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    All diseases are equal, some are more equal than others.
     
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  5. Andy

    Andy Committee Member

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    Well, this is where they explain the different membership options, all we have to do is convince our ME charity of choice to join up, https://www.neural.org.uk/membership-subscriptions/
     
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  6. ladycatlover

    ladycatlover Senior Member (Voting Rights)

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    I think most of our ME Charities aren't rich enough to do that? AfME maybe but I'm not keen on them being members anyway unless they really have changed their leopard spots.

    Interesting to see their other list - the Corporate Supporters!
     
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  7. ladycatlover

    ladycatlover Senior Member (Voting Rights)

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    Sarah94 likes this.
  8. Andy

    Andy Committee Member

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    Their membership rates don't seem particularly onerous to me, unless I'm missing something?

    Screenshot 2019-11-23 at 19.21.20.png
     
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  9. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Of course not.

    I'm just noting that Forward-ME has a link with the Neurological Alliance.
     
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  10. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Their July 2019 Report:

    https://www.neural.org.uk/resource_library/neuro-patience/

    https://www.neural.org.uk/wp-content/uploads/2019/07/neuro-patience-2019-1.pdf

    NEURO PATIENCE

    Still waiting for improvements in treatment and care

    The National Neurology Patient Experience Survey 2018/19: Policy report



    included Chronic fatigue syndrome/ME.

    (Pages: 21, 25, 43 and 50)

    See also:

    Technical Report

    https://www.neural.org.uk/wp-content/uploads/2019/07/Neuro-Patience-Technical-Report.pdf

    (Pages: 45, 47, 48, 49, 68 and 71)
     
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  11. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    InfiniteRubix likes this.

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