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Tell Your Representative to SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS!

Discussion in 'Advocacy Action Alerts' started by Emily Taylor, Jul 17, 2020.

  1. Emily Taylor

    Emily Taylor Senior Member (Voting Rights)

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    Tell Your Representative "SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS!"


    Thanks to your hard work during ME/CFS Advocacy Week, Representative Jaime Raskin (MD-08) introduced H.R. 7057, The Understanding COVID-19 Subsets and ME/CFS Act.

    Ask your Representative to co-sponsor H.R. 7057 today!

    Last month, longtime ME/CFS champion Representative Jaime Raskin of Maryland’s 8th Congressional district introduced landmark legislation for ME/CFS research. H.R. 7057, The Understanding COVID-19 Subsets and ME/CFS Act.

    When passed, this legislation will bolster ME/CFS research at the National Institutes of Health (NIH) by including an additional $60 million for expanded research opportunities looking at connections between ME/CFS and COVID-19 survivors. It will also enable existing public education programs to include ME/CFS and post-viral disease information, with a focus on early diagnosis.


    “We cannot let the number of ME/CFS cases rise due to a lack of research and understanding. As we battle the coronavirus, this critical legislation will help us respond to this ME/CFS hidden health crisis. While we are facing a monumentally dangerous public health crisis, we must take all necessary steps not only to stem the spread of COVID-19, but also to prevent and control its lasting repercussions.”

    — Representative Jaime Raskin (MD-08)



    Read more about Representative Raskin’s Legislation

    Please contact your Representative TODAY and ask them to ask them to sign-on to this effort.


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    petrichor, Kalliope, sebaaa and 12 others like this.
  2. wigglethemouse

    wigglethemouse Senior Member (Voting Rights)

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    For those in the US, this is very very important and only takes a minute of your time to ask your representative to support this legislation instructing the NIH to double their research funding into ME/CFS.

    This is the link to the easy to fill in form. You MUST fill in the Prefix - Mr/Mrs etc in order to find your representative.
    https://solvecfs.secure.force.com/actions/kwac__takeaction?actionId=AR00094

    @Trish can you please add a note about this call to action for the Sunday news update. It's incredibly important that enough people send messages asking for support.
     
    petrichor, rvallee, sebaaa and 7 others like this.
  3. Trish

    Trish Moderator Staff Member

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    An item has been written by one of the team.
     
  4. Kalliope

    Kalliope Senior Member (Voting Rights)

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    The "Take Action" link doesn't work. Is it just a temporary glitch, or is there another link which is better to use?
     
    ahimsa, Yessica and Trish like this.
  5. wigglethemouse

    wigglethemouse Senior Member (Voting Rights)

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    An email has been sent to Emily Taylor about this - others have noticed the issue too.

    Thank you :)
     
    ahimsa, Yessica, Trish and 1 other person like this.

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