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Sweden: ME conference on PEM 14-15th Oct 2020

Discussion in 'General ME/CFS news' started by Kalliope, Jun 18, 2020.

  1. Kalliope

    Kalliope Senior Member (Voting Rights)

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    The Swedish patient organisation RME is organising an ME conference about PEM.

    14th October in Stockholm
    15th October in Malmö

    Lecturers
    Prof. Kristian Sommerfelt - University in Bergen, Norway
    Prof. Betsy Keller - Ithaca College, USA
    Dr. Ron Davis - Stanford University, USA
    MD Kent Nilsson - Bragée Clinic, Sweden

    More information in Swedish here:
    https://rme.nu/konferenser/
     
    Sly Saint, Rosie, Anna H and 11 others like this.
  2. Trish

    Trish Moderator Staff Member

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    Surely they are not expecting Ron Davis to travel to Sweden in October with Covid-19 likely to still be around.
     
    Kalliope likes this.
  3. Kalliope

    Kalliope Senior Member (Voting Rights)

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    I was wondering the same, but now I see he's going to attend via video
     
    Dolphin and Trish like this.
  4. Trish

    Trish Moderator Staff Member

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    Ah, OK, that makes sense.
     
    Kalliope likes this.
  5. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Location:
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    Lectures from this seminar are now available on YouTube

    English lecture are
    "ME research and development of diagnostic tools" with prof. Ron Davis and
    "PEM - strategies for determining and managing the cardinal symptom of ME/CFS" with prof. Betsy Keller.

    In addition there are two lectures in Swedish on diagnosing ME by dr. Kent Nilsson and possible connections between Covid-19 and ME by prof. Jonas Bergquist as well as a lecture in Norwegian by prof. Kristian Sommerfelt on children and adolescents with ME.

    https://www.youtube.com/channel/UCYOw04J29tY5hTLDtdjoaog/featured
     
  6. Trish

    Trish Moderator Staff Member

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    I have just watched Besty Keller's talk.

    She did interesting stuff about 2 day CPET.

    She talked about the recent NIH PEM study and quoted bits of it.

    Then she went into her stuff about treatments, none of which is evidence based as far as I can see.

    I thought it seemed familiar.
    To save repeating myself, here are comments about her talk last year.
    https://www.s4me.info/threads/norwa...e-nov-25th-26th-2019.11827/page-2#post-223731
     
  7. Grigor

    Grigor Senior Member (Voting Rights)

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    Great thank you Trish!

    About Ron Davis. Encouraging to see Abilify double blinded tested.
     
  8. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Location:
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    My bad!

    Professor Kristian Sommerfelt's lecture is NOT in Norwegian, but in English :)

    Haven't watched yet, but other lectures I've seen with him have all been superb!
     
    Simbindi, cfsandmore, Andy and 3 others like this.
  9. Trish

    Trish Moderator Staff Member

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    I have just watched Prof. Kristian Sommerfelt who is a paediatrician. He described in detail the steps he goes through with children and adolescents to diagnose them with ME with very careful questioning. He talked about the importance of pacing and said there is not evidence that pwME have psychological problems or that it has a psychological cause. And he was clear that CBT/GET don't work.

    He said in Norway he has observed numbers of cases rising, and that schools are learning to recognise it and put in place the right support, and GP's can be good, but hospital doctors are generally not good.

    He seemed like a really caring doctor who understands ME well.
     
    Dolphin, Kirsten, Amw66 and 9 others like this.
  10. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Location:
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    Thank you for writing a summary @Trish
    Yes, he is one of the doctors who "gets it" and recognises how brave his patients are and how good they're at coping. I'm sure it means the world for children and adolescents with ME to meet a doctor who witnesses that.
     
    Kirsten, Amw66, Simbindi and 5 others like this.

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