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Suggest a name for Chris Ponting's ME GWAS project!

Discussion in 'General ME/CFS News' started by Sasha, Jul 11, 2019 at 2:14 PM.

  1. Sasha

    Sasha Senior Member (Voting Rights)

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    What it says on the tin! Please suggest your names here about this project.

    :)
     
  2. Trish

    Trish Moderator Staff Member

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    The ME genetics project.

    Edit: Shortened to MEgene.
     
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  3. strategist

    strategist Senior Member (Voting Rights)

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    ME genome project.

    There was the human genome project, a big success. Now there is the ME genome project, hopefully also a big success. That's MEGP or MGP depending on how we abbreviate ME.
     
  4. Sasha

    Sasha Senior Member (Voting Rights)

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    From the other thread:

    So how about:
    • Decode ME/CFS
    • The WIGWAM Study: Worldwide Investigation of Genome-Wide Association in ME/CFS
     
  5. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    Why not just MEG?
     
  6. Sarah94

    Sarah94 Senior Member (Voting Rights)

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    Study of Heritable Illness Traits (SHIT)
    Genome Report On Associations Newly found (GROAN)
    Heritable pathoLogy Project (HeLP)

    Disclaimer: these suggestions are meant as a joke. Since the BPS researchers seem to be fond of acronyms like PACE, SMILE etc.... I wanted to see if I could have some fun coming up with my own. If this is inappropriate for this thread, then it could be made into a new thread?
     
    Last edited: Jul 11, 2019 at 6:23 PM
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  7. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    If we're doing that you could just add S (for 'study of') to my suggestion above.
     
  8. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

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    I like @Sasha Decode ME/CFS

    I also agree with @Simon M that we should have DNA somewhere prominent ...perhaps as a descriptor associated with the name

    E.g. Decode ME/CFS
    The biggest DNA survey of ME/CFS patients


    You can do variants on this using words like “discovery” “search” etc.
     
  9. rvallee

    rvallee Senior Member (Voting Rights)

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    Good but too close to MEGA?

    Can't really remember what MEGA was about though.
     
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  10. Forbin

    Forbin Senior Member (Voting Rights)

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    The ME-NOME Project.

    (?)
     
    Last edited: Jul 11, 2019 at 8:33 PM
  11. Kitty

    Kitty Established Member (Voting Rights)

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    GenoME?

    I'd quite like not to have CFS in whatever the name is, even if it has to go in the strap line to clarify for newer patients.

    Given the number of ME groups on social media, plus all the Facebook-based welfare advice groups who'd likely be willing to signpost it for their clients, plus all the healthy friends of patients who may also know other people with ME, I'm quite optimistic about the ability to reach good numbers of people.

    Reach isn't the same as enrolment, of course, but if this project gained funding it would be a big story with good Press potential. I think it would excite and motivate the wider community, and many would want to take part.
     
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  12. Forbin

    Forbin Senior Member (Voting Rights)

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    I came up with this before I realized that the "S" in GWAS stands for "Study," not "Sequencing."

    "SEQUENCE ME"

    Darn. I even had t-shirts made :).

    seqme.jpg
     
  13. Little Bluestem

    Little Bluestem Senior Member (Voting Rights)

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    But doesn't the study involve sequencing? I think your name/T-shirt would work.
     
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  14. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    GnoME = Genome ME
    GeneSeME = Gene Sequence

    Has anyone tried this? http://acronymcreator.net/ I can't get it to work, but it might be useful.
     
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  15. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    I like @Kitty s GenoME. Simple and effective
     
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  16. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

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    Echoing my comment on the the other thread (about being fed up with annoying acronyms like MEGA, PACE etc.) and taking @Simon M ‘s comments into consideration (about the need to make it clearer to more people what it’s about) I would suggest something like The ME/CFS Genome Study. Or perhaps The Big ME/CFS Genome Study.
     
  17. Trish

    Trish Moderator Staff Member

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    I like the idea of something clear and factually accurate as you suggest, Robert. But we also need a shorthand way of referring to it, I think. I'd hate to have to type out the full title every time I mention it. I think I'd end up referring to your suggestions as MEGS, which seems OK to me.
     
  18. rvallee

    rvallee Senior Member (Voting Rights)

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    Now that's a good one. Simple. Direct.
     
  19. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    Also:
    GAME (Genome Associations in ME)
     
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