Discussion in 'General ME/CFS News' started by Sasha, Jul 11, 2019.
What it says on the tin! Please suggest your names here about this project.
The ME genetics project.
Edit: Shortened to MEgene.
ME genome project.
There was the human genome project, a big success. Now there is the ME genome project, hopefully also a big success. That's MEGP or MGP depending on how we abbreviate ME.
From the other thread:
So how about:
The WIGWAM Study: Worldwide Investigation of Genome-Wide Association in ME/CFS
Why not just MEG?
Study of Heritable Illness Traits (SHIT)
Genome Report On Associations Newly found (GROAN)
Heritable pathoLogy Project (HeLP)
Disclaimer: these suggestions are meant as a joke. Since the BPS researchers seem to be fond of acronyms like PACE, SMILE etc.... I wanted to see if I could have some fun coming up with my own. If this is inappropriate for this thread, then it could be made into a new thread?
If we're doing that you could just add S (for 'study of') to my suggestion above.
I like @Sasha Decode ME/CFS
I also agree with @Simon M that we should have DNA somewhere prominent ...perhaps as a descriptor associated with the name
E.g. Decode ME/CFS
The biggest DNA survey of ME/CFS patients
You can do variants on this using words like “discovery” “search” etc.
Good but too close to MEGA?
Can't really remember what MEGA was about though.
The ME-NOME Project.
I'd quite like not to have CFS in whatever the name is, even if it has to go in the strap line to clarify for newer patients.
Given the number of ME groups on social media, plus all the Facebook-based welfare advice groups who'd likely be willing to signpost it for their clients, plus all the healthy friends of patients who may also know other people with ME, I'm quite optimistic about the ability to reach good numbers of people.
Reach isn't the same as enrolment, of course, but if this project gained funding it would be a big story with good Press potential. I think it would excite and motivate the wider community, and many would want to take part.
I came up with this before I realized that the "S" in GWAS stands for "Study," not "Sequencing."
Darn. I even had t-shirts made .
But doesn't the study involve sequencing? I think your name/T-shirt would work.
GnoME = Genome ME
GeneSeME = Gene Sequence
Has anyone tried this? http://acronymcreator.net/ I can't get it to work, but it might be useful.
I like @Kitty s GenoME. Simple and effective
Echoing my comment on the the other thread (about being fed up with annoying acronyms like MEGA, PACE etc.) and taking @Simon M ‘s comments into consideration (about the need to make it clearer to more people what it’s about) I would suggest something like The ME/CFS Genome Study. Or perhaps The Big ME/CFS Genome Study.
I like the idea of something clear and factually accurate as you suggest, Robert. But we also need a shorthand way of referring to it, I think. I'd hate to have to type out the full title every time I mention it. I think I'd end up referring to your suggestions as MEGS, which seems OK to me.
Now that's a good one. Simple. Direct.
GAME (Genome Associations in ME)
Separate names with a comma.