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Open Stanford Neuroinflammation Study

Discussion in 'Recruitment into current ME/CFS research studies' started by Sly Saint, Oct 7, 2018.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Enrolling now, Stanford:
    "
    This study is interested in ME/CFS patients who would classify themselves in the severe category (mostly bedbound, could be housebound).

    Dr. Montoya and Dr. Michelle James, a neuroradiologist at Stanford University, aim to investigate the inflammatory process in the brain of ME/CFS patients.

    They believe that this study could lead to improvements in our understanding of the disease and help with targeting treatment."

    https://www.meaction.net/2018/10/05...on-study/?mc_cid=8d5f862430&mc_eid=c1fdea04b1
     
    Last edited by a moderator: Oct 7, 2018
  2. JaimeS

    JaimeS Senior Member (Voting Rights)

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    People are telling me the link to signing up for the study doesn't work on here, which may be an issue on Stanford's page; remember that you can always use the email contact info they provided! :)
     
  3. Sasha

    Sasha Senior Member (Voting Rights)

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    Thanks for posting, @Sly Saint. I realise you've posted this in the Recruitment subforum, but I wonder if it would be good to edit the title to something like 'Stanford neuroinflammation study recruiting patients' so that those of us who navigate via the 'New posts' button realise what it's about?

    Might be worth mentioning in the OP that only patients who can get to Stanford for a brain scan can take part (if that's correct, @JaimeS?).
     
  4. Andy

    Andy Committee Member & Outreach

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    Merged thread

    Advertised on their Facebook page.
    Code:
    https://www.facebook.com/StanfordCFSInitiative/posts/941545066033066
     
    Last edited by a moderator: Oct 14, 2018
    ahimsa, alktipping, Joh and 3 others like this.
  5. Cinders66

    Cinders66 Senior Member (Voting Rights)

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    I’m really pleased to see them looking at the severe for this because it seems obvious to me that people still in work aren’t going to be having severe neuro/brain inflammation but what about the incapacitated who’s brains are mush. Obviously they can only access upper end severe for studies like this but that’s still reasonable and the accommodation of travelling to homes for tests initially is very encouraging. Anyone with severe ME knows the difficulty of getting hospitals to come to you so I think it shows the understanding at the top levels. I’m thrilled to see this type of research and that Stanford has the money to do it.
     
    alktipping, LadyBirb, Sing and 2 others like this.
  6. wigglethemouse

    wigglethemouse Senior Member (Voting Rights)

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    Update from the James Lab on Twitter

     
  7. wigglethemouse

    wigglethemouse Senior Member (Voting Rights)

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  8. Andy

    Andy Committee Member & Outreach

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    Further to the posts above, Prof James has been awarded $196k worth of funding.

    https://projectreporter.nih.gov/project_info_description.cfm?aid=10107645&icde=31258613

     
    leokitten, ahimsa, geminiqry and 15 others like this.

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