Last week Suffolk CCG's contacted the Patient / Carer Group to let us have the incredibly disappointing news that the additional service set up last year and led by Dr Nacul is to be suspended. http://nandsme.blogspot.com/2019/01/specialist-me-cfs-clinic-in-suffolk.html No new patients are to be taken on and all existing patients are to be discharged into the care of their GP's with a Care Plan. Patients whose referrals have been accepted will be seen by Dr Nacul in the next couple of months. Suffolk CCG's have assured us that they will explore options to identify another biomedical specialist doctor to meet the needs of moderately and severely affected patients in Suffolk. Unfortunately, as you know, there are not many such doctors available. In both Norfolk and Suffolk problems with the ME and CFS 'community service' provided by East Coast Community Health, remain entrenched and longstanding.