1. Guest, the 'News in Brief' for the week beginning 10th January 2022 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

SMCI: National ME/CFS Patient Registry Meet the Community Guide – Brian Vastag

Discussion in 'General ME/CFS News' started by Andy, Apr 4, 2018.

  1. Andy

    Andy Committee Member (& Outreach when energy allows)

    Messages:
    15,175
    Location:
    Hampshire, UK
    https://solvecfs.org/national-cfs-patient-registry-meet-community-guide-brian-vastag/
     
    ahimsa, Barry and Trish like this.
  2. Trish

    Trish Moderator Staff Member

    Messages:
    38,151
    Location:
    UK
    Well, I've read what Jennie Spotila and Brian Vastag say about the SMCI patient registry but I'm not really any the wiser. Is there a description anywhere of what kind of data they will be collecting, whether it ties in with biomedical research, and who can take part?

    I've just noticed it's called a national patient registry - which presumably means it's just for the USA.
     
    Simon M and Andy like this.
  3. Andy

    Andy Committee Member (& Outreach when energy allows)

    Messages:
    15,175
    Location:
    Hampshire, UK

Share This Page