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SMCI: National ME/CFS Patient Registry Meet the Community Guide – Brian Vastag

Discussion in 'General ME/CFS News' started by Andy, Apr 4, 2018.

  1. Andy

    Andy Committee Member & Outreach

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    https://solvecfs.org/national-cfs-patient-registry-meet-community-guide-brian-vastag/
     
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  2. Trish

    Trish Moderator Staff Member

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    Well, I've read what Jennie Spotila and Brian Vastag say about the SMCI patient registry but I'm not really any the wiser. Is there a description anywhere of what kind of data they will be collecting, whether it ties in with biomedical research, and who can take part?

    I've just noticed it's called a national patient registry - which presumably means it's just for the USA.
     
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  3. Andy

    Andy Committee Member & Outreach

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