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[Sleep Poll] Do you experience insomnia or somnolence with your ME.

Discussion in 'Other Symptoms' started by Rosie, Mar 4, 2018.

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Do you mainly experience insomnia or somnolence with your ME

  1. Insomnia

    25 vote(s)
    38.5%
  2. Somnolence

    6 vote(s)
    9.2%
  3. I don't experience either, sleep OK

    3 vote(s)
    4.6%
  4. I get both types

    22 vote(s)
    33.8%
  5. Sleep near normal hours (8) but still is unrefreshing sleep

    9 vote(s)
    13.8%
  1. Rosie

    Rosie Senior Member (Voting Rights)

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    A recent thread by @Alvin got me thinking more about this. I have always tended toward insomnia all through out my years of ME.

    I often wonder whether the differences here are a subgroup difference. Are there any clues to the reasons why some MEs have insomnia others have somnolence.

    Do autoimmune diseases cause one or the other mainly?

    Why do some get insomnia and others not? There must be differences in metabolites?

    Anyone have any ideas?
     
    adambeyoncelowe and Indigophoton like this.
  2. oldtimer

    oldtimer Senior Member (Voting Rights)

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    I can't answer because I cycle between 'tired and wired' hell and wonderfully deep, longish sleep for quite a few days following a 'crash'.
     
  3. Rosie

    Rosie Senior Member (Voting Rights)

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    @oldtimer I'm glad you mentioned this early because I did write that option and now wish I had kept it. I'll see if I can add that option in again.
     
    adambeyoncelowe and oldtimer like this.
  4. Allele

    Allele Senior Member (Voting Rights)

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    At onset and for the first year or so I had hypersomnia. It transitioned to insomnia, which I've had for years now. At this point I take a handful of supplements and antihistamines every night, so there's no way of knowing if I have insomnia or simply a dependency on all the meds. Every now and then, though, I still have insomnia even with all that, so I guess my current answer is : insomnia.
     
  5. Rosie

    Rosie Senior Member (Voting Rights)

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    I don't think I can add to the poll now. @Hutan , @Mod am I able to make a change to the poll?
     
  6. Hutan

    Hutan Moderator Staff Member

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    I think that you can change the poll, I'm not sure though.

    Certainly I can see a edit button on the poll where I can make a change for you, if you want. Just let me know what you would like.
     
    Rosie likes this.
  7. Rosie

    Rosie Senior Member (Voting Rights)

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    Thanks @Hutan I can see the edit button now. I was blind but now I see :angel:
     
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  8. Rosie

    Rosie Senior Member (Voting Rights)

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    @oldtimer I've added the option that you experience. Thanks.
     
    oldtimer likes this.
  9. svetoslav80

    svetoslav80 Senior Member (Voting Rights)

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    Insomnia, but I have a few other conditions like pain due to chronic inflammation , and anxiety, so I can't say it's only due to CFS.
     
    Indigophoton and Rosie like this.
  10. Little Bluestem

    Little Bluestem Senior Member (Voting Rights)

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    Can you add unrefreshing sleep as an option? I don't really have somnolence. I sleep very badly.
     
  11. Rosie

    Rosie Senior Member (Voting Rights)

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    @Little Bluestem I thought both insomnia and somnolence were unrefreshing in ME? Do others think I should add unrefreshing sleep to the poll?
     
    Indigophoton likes this.
  12. Little Bluestem

    Little Bluestem Senior Member (Voting Rights)

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    I have a lot of weird, disruptive dreams that interfere with my sleep. This doesn't fit under insomnia or somnolence.
     
  13. Allele

    Allele Senior Member (Voting Rights)

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    I don't think anyone with ME experiences refreshing sleep. It's kind of the hallmark of the stupid illness.
     
  14. TiredSam

    TiredSam Moderator Staff Member

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    When my ME started I experienced unrefreshing sleep for many months, and still do sometimes. However, I can now say that I sometimes experience refreshing sleep too, but I think you have to be at the mild end of the spectrum and doing well for that.
     
  15. EzzieD

    EzzieD Senior Member (Voting Rights)

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    For me, it's been insomnia all the way - difficulty getting to sleep, waking up numerous times every night (often woken by flare-up of horrible symptoms, or by my muscles all having seized up painfully so I have to turn over, or by weird disruptive dreams as another poster mentioned above!). Sleep is completely unrefreshing - feel much sicker on waking up than when I went to bed. :yuck: I've never had somnolence, either during the night or during the day.
     
    Jan, Indigophoton, Rosie and 2 others like this.
  16. TigerLilea

    TigerLilea Senior Member (Voting Rights)

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    I'm at the mild to moderate end of ME, but my sleep is anything but refreshing unfortunately.
     
    Indigophoton, TiredSam and Rosie like this.
  17. Webdog

    Webdog Senior Member (Voting Rights)

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    In the first few years, it was just insomnia. Since then it's been mostly both.
     
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  18. Mij

    Mij Senior Member (Voting Rights)

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    First 11 years was good restorative sleep. Then 2 years of insomnia. After that was hypersomnia mixed with insomnia.

    Now it's menopause insomnia and you know how that goes.

    I don't experience pain so that might be a factor too?
     
  19. Jan

    Jan Senior Member (Voting Rights)

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    I have sleep reversal if I don't use sleeping tablets. I don't sleep til 3-4am, then sleep until 12-1pm.

    This started right at the beginning of the illness. Dr Weir told me it's very common in ME along with unrefreshing sleep.
     
    Indigophoton, Rosie and Trish like this.
  20. TigerLilea

    TigerLilea Senior Member (Voting Rights)

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    For about a year I was averaging 2 to 3 hours of sleep a night at the most. I wouldn't want to go through that again.
     
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