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Science Media Centre CFS/ME factsheet for journalists: The illness and the controversy

Discussion in 'PsychoSocial ME/CFS News' started by Cheshire, Mar 21, 2018.

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  1. Cheshire

    Cheshire Moderator Staff Member

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    They're not giving up yet...
    Don't know why they're doing that right now. Could it have something to do with the paper to be released in the next days? (meaning they're freaking out?)

    http://www.sciencemediacentre.org/cfsme-the-illness-and-the-controversy/

    And still the same good old bullshit about CBT and GET:
     
  2. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    That looks to me as if written by Michael Sharpe. He is desperately trying to hold on to his position by pulling rank.

    The international ME research community is almost unanimously fed up to the back teeth with NICE guidelines and want them changed. The Americans and the Dutch have already said so officially. Somebody is living in a goldfish bowl.
     
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  3. Indigophoton

    Indigophoton Senior Member (Voting Rights)

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    Looks like a desperate rearguard action. The Collins definition seems particularly apt: "if someone is fighting a rearguard action or mounting a rearguard action, they are trying very hard to prevent something from happening, even though it is probably too late for them to succeed".
     
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  4. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  5. Kalliope

    Kalliope Senior Member (Voting Rights)

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    I was going to add more quotes from the text which I found unbelievable, but it was impossible to choose just a few.
     
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  6. chrisb

    chrisb Senior Member (Voting Rights)

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    I am not sure I like that definition of a rearguard action. It can also be an action by small forces to delay an attack to enable the bulk of the forces to get away and fight another day on their own terms.
     
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  7. Andy

    Andy Committee Member & Outreach

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    An attempted pushback due to all the success we've been having recently, I would say, possibly even some attempted revenge for being ousted from the CMRC. One useful aspect of this is that it makes it even clearer how biased the SMC is, and to which side.
     
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  8. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    However, experts from the medical community, including independent statisticians, trial design specialists, and other researchers have stated that it is a good quality trial

    I would love to know who these independent statisticians and trial design specialists actually are. They never seem to stand up and be counted. Maybe because someone will point out they are being dumb. When was an unblinded trial with subjective endpoints worth row of beans? But of course the problems with the trial are about psychology and not statistics and presumably nobody asked a trial psychologist.

    I am sorry that I do not tweet, but I never will.
     
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  9. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  10. Sasha

    Sasha Senior Member (Voting Rights)

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    Perhaps someone can tweet a link to your post. :)

    Such as @Tom Kindlon?
     
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  11. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    I think Tom has his own fish to fry @Sasha
     
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  12. ladycatlover

    ladycatlover Moderator Staff Member

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    Well I'll happily quote this :wtf: (Grrrrr! :banghead: )

     
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  13. ladycatlover

    ladycatlover Moderator Staff Member

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    Will happily tweet anything you like with your permission. Or links to posts here?
     
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  14. Sasha

    Sasha Senior Member (Voting Rights)

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    @Cheshire - would it be good to maybe change your title to 'SMC factsheet for journalists: 'CFS/ME - the illness and the controversy' so people realise what it is?

    This factsheet looks pretty desperate to me.
     
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  15. Adrian

    Adrian Administrator Staff Member

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    I think they are reliant on Cochrane as a verification these days. I do wonder if they are trying to get a pre-emtive strike in over this paper
     
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  16. chrisb

    chrisb Senior Member (Voting Rights)

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    We shall await tomorrows Today programme with expectation.

    What would an SMC campaign be without the BBC?
     
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  17. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    "This is a Factsheet issued by the Science Media Centre to provide background information on science topics relevant to breaking news stories. This is not intended as the ‘last word’ on a subject, but rather a summary of the basics and a pointer towards sources of more detailed information. These can be read as supplements to our Roundups and/or briefings."

    No mention of the JHP special edition on PACE:
    http://journals.sagepub.com/doi/full/10.1177/1359105317722370

    eta: have just emailed David Marks with the link to the SMC
     
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  18. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Here's an explanation for that, and a new one
    Those who disagree with this body of evidence cite review articles and reanalyses of trial data published in low impact factor journals such as The Journal of Health Psychology and Fatigue: Biomedicine, Health & Behavior
     
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  19. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

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    I wonder if someone, or a group, might like to do a detailed, line by line analysis of the SMC factsheet for the uninitiated, as I did with response from the Minister for Care in the Westminster Hall debate on PACE (https://www.meaction.net/?p=39062&preview=true) Unfortunately I can't take this on myself at the moment.
     
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  20. Indigophoton

    Indigophoton Senior Member (Voting Rights)

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    Hmm. It appears that impact factor and veracity are independent variables.
     
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