Discussion in 'Health News and Research unrelated to ME/CFS' started by Indigophoton, Jul 4, 2018.
So the NHS, an organisation with such outdated IT infrastructure that it can't even keep it's machines patched to block drive by ransomware, where critical parts of it's diagnostic lineup won't run on anything newer than window xp, where records are routinely either lost or have to be transferred on paper between departments/consultants because their internal e-coms is so unreliable, these are the people who are going to lead the world in genomic medicine? A field which will either need IT that works or result in mass deforestation globally.
Well.........they do say laughter is the best medicine, although I am not sure they meant maniacal or hollow laughter, and I'm fairly sure that calculation is heavily influenced by the price.
when the NHS becomes the first health service in the world to routinely offer genomic medicine
So if I am having trouble with a thrombosed pile (not to be recommended) I will be offered to have my DNA sequenced and put on a waiting list to see a proctologist in the spring?
You mean something like this could happen? 'Somewhere between the analysis and the printed copy we have been attacked by gremlins. Sadly, the passage of time, theft of a computer containing the original draft, and the fact that none of us can find the proofs anymore, mean that we have no idea when this happened.'
How long will it be before the DNA data is passed to (or sold to) insurance companies with sufficient info attached to make it identifiable?
And when we all have to start paying for insurance, how many people will be refused because of dodgy genetics which give them a higher risk of, say, a brain tumour?
the guardian full of lovely sound bites but your not meant to actually think about newspeak just be positive and every thing will be great .
My immediate thoughts exactly. Having worked for the NHS as an IT engineer for many years, during which I had to cope with frustratingly outdated kit, insufficient tools/software for the engineers to carry out our duties so that we had to buy our own, and dealing with big expensive 3rd-party systems that cost a lot of taxpayer money only to turn out not to be able to work as intended because the powers-that-be believed a salesman rather than consulting with the IT department as to whether the system would be suitable for purpose; and then being a patient for the past 12 years with a horrific incapacitating illness for which the only diagnostic procedure on offer was the same routine blood test over and over again which always comes back normal and they have no interest in investigating further (so that I finally ended up having to go private to get at least some help), I somehow can't see this self-same organisation being at 'the forefront of medicine'.
An old phrase involving the words 'piss-up' and 'brewery' comes to mind.
Sorry for the rant, ha ha, but I've had enough years of experience with the NHS, as both employee and patient, to call shenanigans.
Sounds like another excuse for shovelling loads of cash to companies for systems that will never work, but from which non-patients might profit, to enable them to have an excuse for failing to fund other areas, from which patients would derive immediate benefit.
Separate names with a comma.