Results from Survey of Young Europeans with Neurological Conditions (EFNA)

I have not seen a thread yet on the survey so there it is. Hopefully this is the right forum.

The full report: https://www.efna.net/wp-content/uploads/2018/07/EFNAYoungPeopleSurvey.pdf.

The ME-specific report (link in full report is incorrect): https://www.efna.net/wp-content/uploads/2018/07/Data_ME_180704.pdf.

Here is a graphic summary:


Noticeable is that the results are skewed to Norway, with about 2/3 of response. Otherwise the results are not particularly surprising and highlight how important research funding and specialist services are to patient outcome and autonomy.

 

The EFNA (European Federation of Neurological Associations)






Maybe we could do with more of an ME 'presence' on this?

from their survey
"
Almost 80% of the respondents were female, with the majority of the responses coming from the
below disease areas:
•
Multiple Sclerosis
•
Myalgic Encephalomyelitis
•
Chronic Pain
•
Migraine "

Nice to see M.E. being included (as it should be).

 

EFNA Advocacy Awards 2018

winners announced here:
https://www.efna.net/efna-advocacy-awards-2018/






no ME presence(?)

 

https://www.efna.net/report-patient-advocacy-in-the-digital-world-efnas-young-peoples-workshop/

Facebook post from Invest in ME linking to the conference report above and highlighting the survey.


Apparently, "European ME Alliance (EMEA) is a member of EFNA"