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Results from Survey of Young Europeans with Neurological Conditions (EFNA)

Discussion in 'General ME/CFS News' started by rvallee, Jul 22, 2018.

  1. rvallee

    rvallee Senior Member (Voting Rights)

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    I have not seen a thread yet on the survey so there it is. Hopefully this is the right forum.

    The full report: https://www.efna.net/wp-content/uploads/2018/07/EFNAYoungPeopleSurvey.pdf.

    The ME-specific report (link in full report is incorrect): https://www.efna.net/wp-content/uploads/2018/07/Data_ME_180704.pdf.

    Here is a graphic summary:
    [​IMG]

    Noticeable is that the results are skewed to Norway, with about 2/3 of response. Otherwise the results are not particularly surprising and highlight how important research funding and specialist services are to patient outcome and autonomy.
     
    Cheshire, Esther12, alex3619 and 20 others like this.
  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    The EFNA (European Federation of Neurological Associations)






    Maybe we could do with more of an ME 'presence' on this?

    from their survey
    "
    Almost 80% of the respondents were female, with the majority of the responses coming from the
    below disease areas:

    Multiple Sclerosis

    Myalgic Encephalomyelitis

    Chronic Pain

    Migraine "

    Nice to see M.E. being included (as it should be).
     
  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    MEMarge, Andy, rvallee and 2 others like this.
  4. Andy

    Andy Committee Member & Outreach

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    https://www.efna.net/report-patient-advocacy-in-the-digital-world-efnas-young-peoples-workshop/

    Facebook post from Invest in ME linking to the conference report above and highlighting the survey.


    Apparently, "European ME Alliance (EMEA) is a member of EFNA"
     

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