I have not seen a thread yet on the survey so there it is. Hopefully this is the right forum. The full report: https://www.efna.net/wp-content/uploads/2018/07/EFNAYoungPeopleSurvey.pdf. The ME-specific report (link in full report is incorrect): https://www.efna.net/wp-content/uploads/2018/07/Data_ME_180704.pdf. Here is a graphic summary: Noticeable is that the results are skewed to Norway, with about 2/3 of response. Otherwise the results are not particularly surprising and highlight how important research funding and specialist services are to patient outcome and autonomy.