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Podcast: Episode 37: Finding Answers for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

Discussion in 'General ME/CFS news' started by Sly Saint, Nov 6, 2021.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    UK
  2. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Norway
    This was very good. My impression it that this is the first time the journalist is covering ME, and he's really done his homework!

    ETA: Thank you for warning about the loud music in the start!
     
  3. Ash

    Ash Senior Member (Voting Rights)

    Messages:
    1,105
    Location:
    UK
    Overall he did a pretty good job. He does make a sprinkling of mistakes. But more accurate than vast majority of UK newspapers and journal articles out over recent weeks.

    Since writing that I have forgotten what a couple of these were.

    “off track for a decade”
    when he has stated the formal dismissal and re-categorisation of this disease as Hysteria Mass or otherwise began in 70’s.
    There is evidence of a steady programme to solidify a single treatment approach based on this conception from that day to now and on into the future.

    This approach is one of denial of possibility of disease in favour of assumption of mental dysfunction on part of patient. This very same is that which is not delivering the goods in studies or in life.

    He referrers to this non delivery without naming the source. “Off track” “wrong” “discredited” but who is, is pretty vital to this story.

    He has clearly seen what these people are capable of so
    I can’t judge too harshly.

    However the history of ME doesn’t make sense if all the actors are edited out. I am not suggesting specific names are necessary.

    To explain however briefly what has been said and done by various professional bodies collectively to bring us to a situation of no funding no treatment and importantly no care and plenty of poverty and social exclusion, is necessary.
     
    Last edited: Nov 6, 2021
    Amw66, Sean, alktipping and 4 others like this.

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