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OMF website resource list - should Science for ME forum be on this list?

Discussion in 'General Advocacy Discussions' started by ahimsa, Oct 12, 2019.

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  1. ahimsa

    ahimsa Senior Member (Voting Rights)

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    While searching for a copy of an OMF fact sheet I stumbled across this web page:

    https://www.omf.ngo/resource-center-2/

    It lists a bunch of resources, including patient forums, but not this forum.

    I have no idea what the OMF criteria are for getting on this list! But I thought I'd point it out and ask whether it might be worth getting this forum added to their list.
     
  2. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    Looking down the list it would seem to make sense us being included.

    Their contact details are at the bottom of the page
    Not clear if we should officially contact them or if anyone could just point out our existence to them.
     
  3. Lynn

    Lynn Established Member

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    I do some work on their website. That was a link to an old page that is now taken down. They just updated their Resources page to this https://www.omf.ngo/resource-center/

    I would definitely suggest that the best way to be included would be to contact them.
     
  4. rvallee

    rvallee Senior Member (Voting Rights)

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    Good idea.

    BTW the link seems to have changed, remove the "-2" to get the correct page.
     
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  5. Andy

    Andy Committee Member & Outreach

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    Should we be on the list? Well, that's for the OMF themselves to decide.

    My outreach efforts towards them, in relation to Q&As with members of their team, haven't been encouraging, so I don't feel that it would help if I asked if they would add the forum to their list, but I'd be happy if members want to ask the OMF themselves.
     
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  6. ahimsa

    ahimsa Senior Member (Voting Rights)

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    Thanks for the info, @Lynn :)

    I did contact OMF. I sent email to info@omf.ngo. No response yet. I will follow-up soon.

    I think Science For ME would be a good addition to the bottom of this page:

    https://www.omf.ngo/resources-international-support/
     
    Annamaria, Trish and Andy like this.

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