Discussion in 'General ME/CFS News' started by Andy, Dec 13, 2018.
Could go one of two ways I suppose. The partners in this might encourage NCNED to raise their standards, or they'll follow NCNED's lead - it will certainly be interesting to find out who they are working with in the UK.
And interesting to see all the 'ICC is the one true definition' posts underneath the post as well.
ETA: And I do wish that NCNED would use ME/CFS instead of CFS/ME.
I assume the partners in this include those who took part in their recent conference. The program for it is here:
I can't see anyone in the UK on that list, so I'm none the wiser about UK members of their consortium.
USA speakers included Peterson and Baraniuk.
On the NZ front, I see Dr Eiren Sweetman was attending the conference from the University of Otago team (Professor Tate). It makes sense that this group signs on to CHIME. It's a small group and it must be hard to build momentum unless working fairly closely with other teams.
I think the CHIME consortium probably isn't a bad thing. I don't think we should assume that the members necessarily agree with NCNED research findings. Communication between teams, especially with teams from non-English speaking countries, will hopefully be helpful.
I suppose politics is the answer of why this recently announced group have been formed separately, https://s4me.info/threads/me-cfs-di...-mdrn-australian-research-collaborative.7043/
Separate names with a comma.