1. Guest, the 'News In Brief' post for w/c 17th September is available here.
    Dismiss Notice

MP Theresa Villiers asks for NHS for more PACE!

Discussion in 'General ME/CFS News' started by adambeyoncelowe, Mar 14, 2018.

  1. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

    Messages:
    994
    Likes Received:
    6,761
    Theresa Villiers MP asked the Secretary of State for Health and Social Care if the NHS could roll out more 'PACE treatment' for people with myalgic encephalomyelitis.

    Can someone in her constituency point out that it's pacing we want, not PACE? We don't want ill-informed politicians setting us back.

    https://www.theyworkforyou.com/wrans/?id=2018-03-08.131736.h&p=11500
     
  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    1,721
    Likes Received:
    14,119
    thread here:
    https://www.s4me.info/threads/uk-house-of-lords-house-of-commons-questions.707/page-4
     
  3. Keela Too

    Keela Too Senior Member (Voting Rights)

    Messages:
    526
    Likes Received:
    5,015
    Location:
    Sally Burch - Northern Ireland
  4. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

    Messages:
    994
    Likes Received:
    6,761
    Thanks.
     
    Louie41 likes this.
  5. Nancy Blackett

    Nancy Blackett Established Member (Voting Rights)

    Messages:
    56
    Likes Received:
    545
    Also, pacing isnt treatment. It doesnt help anyone recover, pacing can help prevent us getting worse. Other factors are involved in deterioration too, so pacing isnt a guarantee to avoid deterioration.

    The Pace trial was cynically named 'PACE' to fool people, especially patients, that the study was about pacing.
     
  6. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    1,905
    Likes Received:
    14,682
    Location:
    UK
    It may have come up in another thread but I think it deserves its own thread, @adambeyoncelowe! Often, new things crop up in long-running discussions that need flagging up in their own right. Perhaps if you add the MP's name and constituency to the title, their constituents will notice and will start writing in.
     
  7. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

    Messages:
    994
    Likes Received:
    6,761
    I'm not sure how to edit the title?
     
    Louie41 likes this.
  8. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    1,905
    Likes Received:
    14,682
    Location:
    UK
    Below the title of your thread, and over to the right of the screen, there's a dropdown menu called 'Thread tools', which includes an option to edit your title. :)
     
  9. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    2,063
    Likes Received:
    16,937
    Thanks - quoting for people who don't click through:

     
  10. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    1,721
    Likes Received:
    14,119
    Also from the other thread posted by me
    "Have just emailed her to say we don't want the 'therapies' recommended by the PACE trial, that in fact we want them removed from the NICE guidelines now, and sent her a link to the petition."

    eta: it might be easier just to read the other thread
     
    Last edited: Mar 14, 2018

Share This Page