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Michael VanElzakker is looking for CSF samples

Discussion in 'BioMedical ME/CFS Research' started by rvallee, Jul 10, 2019 at 8:57 PM.

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  1. rvallee

    rvallee Senior Member (Voting Rights)

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    I figured there would be more chances of a response here than on Twitter. More specifically he's looking at who already went to the trouble of storing samples. Does the UK biobank go there?



    I watched Michael's presentation at the Harvard symposium yesterday. I think he's looking in a very promising direction. One thing that really struck is when he mentioned how most of neurology is focused on the neocortex and the more primitive parts of the brain are boring stuff. I think he's right that things are overlooked there. It's where everything plugs into and modulates nervous response.
     
  2. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Jonas Bergquist, maybe?

    Uppsala University's new research centre around ME will be the third in the world after the universities in Stanford and Harvard. All projects are funded by the Open Medicine Foundation, a research foundation in the United States based on private donations. In Uppsala, the funds will initially be used for a doctoral student in analytical chemistry, the first in Sweden that has a focus on biomarker research within ME. The centre therefore starts on a small scale and develops from the existing research solution.

    “In addition, other research groups and the already existing specialist clinics for ME in Sweden will be associated with us, says Jonas Bergquist. “The focus will be on care, diagnostics, sampling, collection of samples and biochemical analyses.”

    https://www.uu.se/en/news-media/news/article/?id=12792&area=5,10,16&typ=artikel&lang=en

    ETA: Bergquist had already been suggested on twitter... Apparently he doesn't have the right kind of samples.
     
  3. Cinders66

    Cinders66 Senior Member (Voting Rights)

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    Pretty sure Peterson had the samples Lipkin used.

    If anyone hasn’t watched it yet, OMF have the Harvard conference presentations up and I agree Michaels is very good and very watchable from a lay perspective. His research is partly on microglia activation (yay) and interesting from a severe perspective he gave some possible explanations of our often severe problems with normal mental function and sensory sensitivities (drawing on what is already known in concussion) so I’m very excited by this brain research.

    I don’t think uk does CSF ME research, just CFS!
     
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  4. duncan

    duncan Senior Member (Voting Rights)

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    James Baraniuk over at Georgetown University has done CSF sampling of ME/CFS.
     
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  5. Cinders66

    Cinders66 Senior Member (Voting Rights)

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    I agree that it looks promising that an area of the brain not normally bothered with might turn out to be important for us and it’s a fundamental part and we are fundamentally struggling
     
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