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Merryn Crofts death ruled to be from ME by inquest

Discussion in 'General ME/CFS News' started by Andy, May 18, 2018.

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  1. Andy

    Andy Committee Member & Outreach

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    Copy and paste this URL to see the long Facebook post from the ME Association
    Code:
    https://www.facebook.com/meassociation/posts/1734001159990868


    Facebook post from Merryn's family which shares the same MEA post.
     
    Andy, May 18, 2018
    #1
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  2. Esther12

    Esther12 Senior Member (Voting Rights)

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    So sad. Best wishes to all her family and friends.
     
    Esther12, May 18, 2018
    #2
    Invisible Woman, Squeezy, Skycloud and 26 others like this.
  3. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

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    I’m sad but happy they got the verdict they were looking for.
     
    arewenearlythereyet, May 18, 2018
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  4. MeSci

    MeSci Senior Member (Voting Rights)

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    Hopefully it will be printed elsewhere, for those of us who aren't on Facebook.
     
    MeSci, May 18, 2018
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  5. Hutan

    Hutan Moderator Staff Member

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    This seems to be tremendously validating. I feel very grateful to Merryn's family for allowing the post mortem and for advocating so well, and to the medical staff who testified and the Coroner.

    I thought John Siddle did a very nice job with the report.

    I hope so too.
     
    Hutan, May 18, 2018
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  6. Lisa108

    Lisa108 Senior Member (Voting Rights)

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    Here is the link to ME Association
     
    Lisa108, May 18, 2018
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  7. Inara

    Inara Senior Member (Voting Rights)

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    This is so important. Happy and sad.

    (Thank you @Lisa108 for the link - I wanted to save it, and I couldn't on Facebook.)
     
    Inara, May 18, 2018
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  8. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

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    Merryn's family are real heroes. Its so terribly sad but I am glad to see the truth being told.
     
    Sunshine3, May 18, 2018
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  9. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

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    You can see the report from the link Andy posted.



    I can read it even though I don't have a Facebook account. A box pops up asking you to sign in or join, but there is an option to click on "Not Now" on that box which makes it go away (although it has a tendency to pop up quite often).
     
    Arnie Pye, May 18, 2018
    #9
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  10. Andy

    Andy Committee Member & Outreach

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    Andy, May 18, 2018
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  11. Bill

    Bill Senior Member (Voting Rights)

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    I found this photo of Merryn Crofts taken (I presume) before she became ill.

    Just heartbreaking.

    Bill


    [​IMG]
     
    Bill, May 18, 2018
    #11
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  12. dangermouse

    dangermouse Senior Member (Voting Rights)

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    Poor, beautiful Merryn. It just breaks my heart. :(
     
    dangermouse, May 18, 2018
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  13. Sean

    Sean Senior Member (Voting Rights)

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    :(
     
    Sean, May 19, 2018
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  14. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

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    Two more links :

    https://www.mirror.co.uk/news/uk-news/young-woman-bed-bound-three-12559425

    Article continues at link above...

    https://www.manchestereveningnews.c...ter-news/young-woman-who-spent-years-14678759

    Article continues at link above ...
     
    Arnie Pye, May 19, 2018
    #14
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  15. Sisyphus

    Sisyphus Senior Member (Voting Rights)

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    I don’t believe she’s the first to have died of this disease. Others were just not recorded, As the diagnosis is unknown to medical examiners.

    I spoke with Richard then Konneysberg a few years ago, and he mentioned that s young man he worked with who had dropped weight to starvation level and who was unable to absorb nutrition due to M.E. The hospital had sent him home, saying that he had anorexia and was vuntarily starving himself. Rich found an M.D. who would work with him, and told him to get the young man started on a PIC line So he would not die.

    That was the correct course of action, and he improved. Once the young man (I never learned his name of course, confidentiality and all that) was a little better, he started on the methylation protocol developed by RVK and Dr. Enlander. Rich also stated that there were cases that he found too late, and who died. It did not occur to me to ask what cause of death was listed.
     
    Sisyphus, May 19, 2018
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  16. strategist

    strategist Senior Member (Voting Rights)

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    @Jonathan Edwards she was found to have ganglionitis, low grade brain inflammation, and "destruction of nerve fibres".
     
    strategist, May 19, 2018
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  17. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Where does that information come from?
     
    Jonathan Edwards, May 19, 2018
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  18. strategist

    strategist Senior Member (Voting Rights)

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    http://www.rochdaleonline.co.uk/new...death-attributed-to-myalgic-encephalomyelitis
     
    strategist, May 19, 2018
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  19. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    That all seems a bit vague. It does not sound like anything that would explain her illness to be honest. serve root inflammation usually produces symptoms like sciatica.

    Hopefully there may be a proper scientific report drawn up.
     
    Jonathan Edwards, May 19, 2018
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  20. chrisb

    chrisb Senior Member (Voting Rights)

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    Could inflammation of the ganglia cause the parasthesia which were part of Ramsay's criteria?
     
    chrisb, May 19, 2018
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