Thank you @lunarainbows for sharing the information about the autism passport. We definitely need something similar, and so well recognised, for ME. I wonder how on earth we go about getting it. It would be great if the NICE guidelines would include it. From what I gather from the descriptions about how the NICE guidelines operate, it would mean some organisation with clout would need to contact NICE to request it. And we would need solid evidence that NICE would recognise. Why is everything we need such a mountain to climb? And why is it left to sick people to try to climb it alone? Why are so many 'health professionals' building barriers against us instead of giving us a helping hand? Why are some of them even throwing rocks at us as we try to struggle up the mountain? Where are the crowds of doctors fighting our cause? Sorry, ignore that last paragraph. I'm in a melancholy mood today.