Discussion in 'Fibromyalgia and Connective Tissue Disorders' started by Andy, Aug 30, 2018.
"I'm suffering from a form of fibromyalgia."
'a form of' ?
Her name is trending on Twitter
She's a national treasure - everyone loves her on DIDs. Hope she's ok. Glad she named fibromylagia and not just 'health issues' - all helps to increase awareness.
There was also a cyclist in the news yesterday who has been forced to stop and rest after contracting epstein barr virus.. I can't find the link now though. Anyone see it?
The cyclist is Mark Cavendish. There was a thread here: https://www.s4me.info/threads/mark-...cling-after-virus-diagnosis.5531/#post-100144
My first diagnosis was ‘ME type illness’ until i was upgraded later.
On the news yesterday they said she was taking time off to, "get treatment for her illness".
Nice and straightforward then. I wonder which snake oil practitioner may have got hold of her!
She might get referred to the nearest IAPT clinic, as Fibromyalgia is on the MUS list. Wonder if/when the BBC will dare to expose what is going on re: MUS(?)
posted Youtube vid of Good Morning Britain (tv) discussion of Fibro/Kirsty Young here:
I think it varies depending on what you are looking at, but chronic pain, including fibromyalgia has by turns been described as MUS or as a LTC in IAPT materials. For LTCs there should be a co-morbid depression or anxiety (not required for MUS), but I can't speak to the realities of what patients are actually being referred. I think chronic pain, to include fibromyalgia, is being categorised for national reporting purposes as an LTC. Happy to be corrected.
This article by Sarah Baxter is on the leader page of the Times today, not as a leading article but as an opinion piece sharing the page with Dominic Lawson. It will get a huge readership. I am so horrified by the waffle and innuendo I am incoherent. She even brings in Florence Nightingale whose illness was attributed - “”almost certainly wrongly- to syphilis.”
It is appalling journalism, just illinformed gossip. I think it needs a response preferably one based clearly in science. Can anyone do this? @Jonathan Edwards.
There is a thread on the Times article here:
Thank you @Trish. Had just been following this thread. Glad to see it has been picked up. I do think it needs a response.
Akin to "a form of arthritis" or a form of "mental illness" or a form or forum of fungus, perhaps?
No, (yank here). Reminds me of the actor Morgan Freeman who was diagnosed with fibro but refuses to do any publicity for the cause. Afraid he won't get more work.
Separate names with a comma.