1. Guest, read our 'News in Brief' post for w/c 13th Jan by clicking here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Kirsty Young expecting to "recover" from fibromyalgia?

Discussion in 'Fibromyalgia and Connective Tissue Disorders' started by MeSci, Sep 30, 2018.

  1. MeSci

    MeSci Senior Member (Voting Rights)

    Messages:
    1,901
    Likes Received:
    11,836
    Location:
    Cornwall, UK
    On today's radio page in Radio Times, re Desert Island Discs:

    'She (Lauren Laverne) is only standing in while Young recovers from the condition fibromyalgia, though we're told that this could take "a number of months".'

    Maybe downplayed to try to save her job?
     
  2. NelliePledge

    NelliePledge Senior Member (Voting Rights)

    Messages:
    4,518
    Likes Received:
    29,776
    Location:
    UK West Midlands
    Maybe just the ignorance of the newly diagnosed
     
  3. Adrian

    Adrian Administrator

    Messages:
    4,310
    Likes Received:
    21,114
    Location:
    UK
    She may have been missold treatments by doctors. There is a drug available to help with Fibromyalgia so this may help get it under control and take a while to do this?
     
    inox, MeSci, NelliePledge and 5 others like this.
  4. TigerLilea

    TigerLilea Senior Member (Voting Rights)

    Messages:
    967
    Likes Received:
    4,872
    Location:
    Metro Vancouver, BC
    When I was first diagnosed with ME I was told it would take six months up to two years for recovery.
     
    Perrier, Skycloud, Webdog and 8 others like this.
  5. Wonko

    Wonko Senior Member (Voting Rights)

    Messages:
    3,252
    Likes Received:
    23,801
    Location:
    UK
    Did they explicitly say when, what date, this expected recovery time was from?

    Over the years I've met/known a few people with FM, I've not heard of any of them recovering, but I'm not saying it doesn't happen, the number of things, that do happen, that I don't hear about.......is probably a significant number.
     
  6. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

    Messages:
    1,839
    Likes Received:
    12,820
    I was told two years, too. That's BACME training for you.
     
  7. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

    Messages:
    1,916
    Likes Received:
    13,884
    I was told within a year...now you just need to do this GET programme
     
  8. Mij

    Mij Senior Member (Voting Rights)

    Messages:
    2,127
    Likes Received:
    11,437
    I was told that I was 'atypical' and would make a full recovery within a few years by an ME 'specialist'. But, I was also advised not to exercise or over do myself after recovering.
     
  9. Wonko

    Wonko Senior Member (Voting Rights)

    Messages:
    3,252
    Likes Received:
    23,801
    Location:
    UK
    So after having made a full recovery, you wouldn't be able do to the things people who have not got ME could do?

    Sounds like an interesting definition of full recovery to me.:banghead:
     
  10. Mij

    Mij Senior Member (Voting Rights)

    Messages:
    2,127
    Likes Received:
    11,437
    @Wonko my diagnosis at the time was PVFS.
     
    ladycatlover, MEMarge, MeSci and 3 others like this.
  11. TigerLilea

    TigerLilea Senior Member (Voting Rights)

    Messages:
    967
    Likes Received:
    4,872
    Location:
    Metro Vancouver, BC
    That was my diagnosis, also. When I questioned my doctor about the name a year later she told me that it was the same thing as CFS - she just didn't like the name CFS so she used PVFS.
     
    ladycatlover, Nellie, MEMarge and 5 others like this.
  12. Wonko

    Wonko Senior Member (Voting Rights)

    Messages:
    3,252
    Likes Received:
    23,801
    Location:
    UK
    That's a coincidence, my diagnosis, over a decade ago, was also PVFS.

    Being fully recovered from PVFS sucks.
     
    Annamaria, ladycatlover, sea and 13 others like this.
  13. Mij

    Mij Senior Member (Voting Rights)

    Messages:
    2,127
    Likes Received:
    11,437
    Just last year my diagnosis was CFS when I took a peek at my GP's computer screen.
     
  14. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    3,031
    Likes Received:
    14,363
    Ah - the magical 2 year recovery . Seems to work on the basis of if it' s repeated often enough it must be true....
     
  15. petrichor

    petrichor Senior Member (Voting Rights)

    Messages:
    112
    Likes Received:
    412
    Fibromyalgia is more treatable than CFS, so maybe that's what they mean
     
    andypants, inox and Squeezy like this.
  16. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    3,879
    Likes Received:
    32,932
    Location:
    UK
    My GP said 'In ten years time this will all just be a bad dream.......'. 17 years on and the nightmare continues.......
     
  17. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

    Messages:
    1,839
    Likes Received:
    12,820
    I think they all do now. But it's been moved from mental health to something else. It said 'musculoskeletal problems > chronic pain > CFS' or something on my documents from the DWP.
     
  18. Mij

    Mij Senior Member (Voting Rights)

    Messages:
    2,127
    Likes Received:
    11,437
    @adambeyoncelowe . . . according to my GP of 35 years who sent me to various specialists in 1991 when I fist became ill, it's 'fatigue". When she asks, 'how is your chronic fatigue?" I don't even reply.
     
  19. NelliePledge

    NelliePledge Senior Member (Voting Rights)

    Messages:
    4,518
    Likes Received:
    29,776
    Location:
    UK West Midlands
    Yes my GP wrote in the letter I asked her to do for my private ME specialist I hope you can help this patient with her fatigue :banghead:
     
  20. Skycloud

    Skycloud Senior Member (Voting Rights)

    Messages:
    1,814
    Likes Received:
    13,565
    Location:
    UK
    I'm another who was told 2 years, though to be more accurate the GP actually said that he couldn't say how long it would take, it could be "2 weeks, 2months or 2 years". I think he must have forgotten to include 2 decades... 2 centuries. Anyway, so far 2 years, like tomorrow, hasn't come.
     

Share This Page