Discussion in 'General ME/CFS News' started by Sly Saint, Oct 4, 2019.
from IAFME Facebook page
anyone have any more info?
Not from me. I have connections/contact with a number of the various groups in the ME advocacy field but never had the opportunity, or saw the point, in trying to cultivate contact with IAFME.
Not sure what’s been achieved by this initiative
I don’t know if AFME will cover this at their conference. Weren’t they the main founder and funder ?
Was it a fixed term appointment / is funding her salary dependent on multiple inputs ?
Now Heumber Perry and artistic career taking off
Perhaps a change in priorities
Perhaps a fixed term contract
Perhaps wages funding ended
there still isn't much on their website......
no resources files whatsoever
maybe slight disagreements re content? given AfMEs leaflets, am not surprised.
Alexandra Heumber still named as contact on the website
Didn't Sonia Chowdrey say she was taking a bit more of a back seat at AfME to concentrate on this IAFME initiative (last years agm)?
in list who we are :
"Forward ME (a House of Lors-led collaboration of ten ME charities) | United Kingdom"
(typo in original)
Wonder if all will be revealed tomorrow at their agm.
Separate names with a comma.