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International Alliance for ME - Alexandra Heumber quits Oct 2019

Discussion in 'General ME/CFS News' started by Sly Saint, Oct 4, 2019.

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  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    from IAFME Facebook page

    anyone have any more info?
     
    Sly Saint, Oct 4, 2019
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  2. Andy

    Andy Committee Member & Outreach

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    Not from me. I have connections/contact with a number of the various groups in the ME advocacy field but never had the opportunity, or saw the point, in trying to cultivate contact with IAFME.
     
    Andy, Oct 4, 2019
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  3. NelliePledge

    NelliePledge Moderator Staff Member

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    Not sure what’s been achieved by this initiative
     
    NelliePledge, Oct 4, 2019
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  4. Cinders66

    Cinders66 Senior Member (Voting Rights)

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    I don’t know if AFME will cover this at their conference. Weren’t they the main founder and funder ?
     
    Cinders66, Oct 7, 2019
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  5. Amw66

    Amw66 Senior Member (Voting Rights)

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    Was it a fixed term appointment / is funding her salary dependent on multiple inputs ?
     
    Amw66, Oct 7, 2019
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  6. Amw66

    Amw66 Senior Member (Voting Rights)

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    Amw66, Oct 7, 2019
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  7. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    there still isn't much on their website......
    no resources files whatsoever
    https://iafme.org/resources

    maybe slight disagreements re content? given AfMEs leaflets, am not surprised.

    Alexandra Heumber still named as contact on the website
    https://iafme.org/privacy-policy

    Didn't Sonia Chowdrey say she was taking a bit more of a back seat at AfME to concentrate on this IAFME initiative (last years agm)?

    in list who we are :
    "Forward ME (a House of Lors-led collaboration of ten ME charities) | United Kingdom"

    (typo in original)
    https://iafme.org/who-we-are

    Wonder if all will be revealed tomorrow at their agm.
     
    Sly Saint, Oct 14, 2019
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