1. Guest, the 'News in Brief' for the week beginning 23rd November 2020 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice
  3. Guest, NICE have published their draft guideline for ME/CFS, click here to read about it.
    Dismiss Notice

Independent commission on future of NHS call for submissions

Discussion in 'Advocacy Projects and Campaigns' started by NelliePledge, Mar 17, 2018.

  1. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    6,598
    Likes Received:
    40,373
    Location:
    UK West Midlands
    Picked up from social media. Article in the Lancet London School of Economics have this project with an independent commission looking to identify big challenges faced by the NHS. An opportunity to highlight the harm and financial waste of ME being “treated” with ineffective approach and the MUS spreading BPS to lots of other chronic conditions. Richard Horton is on the Panel so a good opportunity to shame him for his own contribution to shoring up PACE.
    https://www.lselancetcommissionnhs.com/
    http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(18)30574-9/fulltext
     
  2. Trish

    Trish Moderator Staff Member

    Messages:
    27,647
    Likes Received:
    135,233
    Location:
    UK
    I can't manage a submission myself, but I'd love those who might be able to to put their heads together and write a submission telling the NHS could save money by scrapping the roll out of IAPT/MUS and current CBT/GET based clinics and replace them with good quality guidance for GP's on how to diagnose and support patients with ME, and when and to whom to refer for further testing.
     
  3. ScottTriGuy

    ScottTriGuy Senior Member (Voting Rights)

    Messages:
    664
    Likes Received:
    6,002
    Location:
    Toronto
    That submission may be useful beyond UK borders for same reasons.
     
    MEMarge, ladycatlover, MeSci and 5 others like this.
  4. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,339
    Likes Received:
    21,181
    Location:
    UK
    MEMarge, ladycatlover, Jan and 4 others like this.
  5. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    4,051
    Likes Received:
    18,805
    Perhaps an S4ME submission ?
     
  6. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    4,051
    Likes Received:
    18,805
    Crossposted with @Sasha
    Given stakeholder role to NICE guideline , it may offer an opportunity to hone arguments and widen awareness?
     
  7. Graham

    Graham Senior Member (Voting Rights)

    Messages:
    2,888
    Likes Received:
    25,331
    Perhaps we could use PACE to widen the attack and include MUS by highlighting the weak standards of "proof" required of psychiatrists and psychologists.
     
  8. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

    Messages:
    7,788
    Likes Received:
    80,645
    It looks a bit like submitting a case for abolishing gold plated lifts to Mr Trump to me.

    This needs a different angle I think.
    Mr Horton is probably not that well disposed to our community.
     
    ladycatlover, Esther12, Barry and 2 others like this.

Share This Page