Discussion in 'ME/CFS research news' started by Barry, Apr 17, 2018.
Has anyone here ever been on Ampligen?
Here in the US, the FDA will allow only 100 people to use it at any given time. It is all out of pocket and the cost of the drug has gone from $25k a year to $45k over the last couple of years. That is just for the drug and does not include the infusion costs. But I hear it makes a huge difference.
Whether it is actually working on a virus deeply embedded in our nerve tissue or not no one knows. There is a drug I am on for inflammatory arthritis which is an old malaria drug, Hydroxychloroquine, that helps with the pain and inflammation. It is believed that the immune system processes are activated with arthritis but not due to a virus although this viral drug works. So it could be the same with Ampligen; we just don't know if there is a virus or not.
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