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Families with multiple members with ME/CFS wanted for Moreau study - worldwide

Discussion in 'BioMedical ME/CFS Research' started by Sasha, Dec 5, 2017.

  1. Sasha

    Sasha Senior Member (Voting Rights)

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    Mentioned by Dr Alain Moreau in his webinar this evening - I think people can be from any country. I imagine the contact details are as in this post about his twin study.

     
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  2. Inara

    Inara Senior Member (Voting Rights)

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    Thank you, @Sasha. He also mentioned genetic studies with big families, if I remember and understood correctly.
     
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  3. Sasha

    Sasha Senior Member (Voting Rights)

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    Do you think it's only for large families? Wondering if I should edit my title!
     
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  4. Inara

    Inara Senior Member (Voting Rights)

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    No no. He mentioned twin studies. Later he mentioned big families (there was a slide with a family tree, where red meant "with ME" and blue "without ME"). If I understood correctly these were different topics. Is that wrong?
     
  5. Sasha

    Sasha Senior Member (Voting Rights)

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    I think you're right that they're two separate studies, but I wondered if he only wanted big families for the 'family' study (as opposed to the twin study). His lab doesn't seem to have a website of its own with this kind of thing on it.
     
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  6. Perrier

    Perrier Senior Member (Voting Rights)

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    Where was his webinar?
     
  7. Sasha

    Sasha Senior Member (Voting Rights)

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  8. Alvin

    Alvin Senior Member (Voting Rights)

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  9. Liv aka Mrs Sowester

    Liv aka Mrs Sowester Senior Member (Voting Rights)

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    I didn't watch it, I'm UK based but sure that I could provide blood and other family members would too...
     
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  10. Inara

    Inara Senior Member (Voting Rights)

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    @Sasha
    I meant "many generation" families, sorry for this misunderstanding. You are right, they don't have to be big. I understood that he is interested in whether and how ME might be inherited, e.g. from parents to children, to their children and so on.
     
  11. Sasha

    Sasha Senior Member (Voting Rights)

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    Oh! I see. The misunderstanding was mine there! )

    Thanks - that's a very useful clarification.

    I'm surprised not to see this study and the twins one pushed more widely. The limiting factor is surely going to be getting enough participants, and quickly enough.
     
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  12. Justy

    Justy Senior Member (Voting Rights)

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    Do you have multiple family members affected? I do too.

    My birth mother (even better for research as i didnt grow up with her) has M.E, a maternal cousin i have never met, one of my 4 children has been ill and another one shows tendencies.
     
  13. Liv aka Mrs Sowester

    Liv aka Mrs Sowester Senior Member (Voting Rights)

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    Yes, me, my mum, my daughter and my paternal uncle.
     
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  14. Inara

    Inara Senior Member (Voting Rights)

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    @Sasha, did I understand him correctly, do you think?
     
  15. Sasha

    Sasha Senior Member (Voting Rights)

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    I don't know. It would be good if he put out a direct call for participants, with a bit more info, really! :)
     
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  16. Inara

    Inara Senior Member (Voting Rights)

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    Shall I write him and ask to clarify?
     
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  17. Sasha

    Sasha Senior Member (Voting Rights)

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    If you'd like to - it would be good to help him get more participants for his study. :)
     
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  18. Liv aka Mrs Sowester

    Liv aka Mrs Sowester Senior Member (Voting Rights)

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    I emailed Alison Rae at Action CIND, she's forwarding my message to Dr Moreau. When I hear from him I will share contact details.
     
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  19. Justy

    Justy Senior Member (Voting Rights)

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    Im sorry to hear that - sounds like we are similar. Would be interesting to have a chat by PM about our illness and swap notes.
     

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