I realise that this is the community lounge and it may be hard to drag people away from Betty's bar but I have a very short memory span and thought it would be good to flag up some feedback from a meeting today where EUROMENE was discussed. It is a community sort of feedback. (On a broader front maybe it would be good to have a subsection specifically for news updates from various charities and other organisations keen to keep people informed and get feedback. I am thinking of e.g. Solve ME, MEA, IiME, NIH, etc etc.) EUROMENE is, like Betty's, a pretty virtual club of European ME researchers, but they do meet in person a couple of times a year and it seems to have been a very useful networking system. They were lucky enough to get a COST grant for regular meetings. Documents have been, or are being, produced on epidemiology, economic burden of ME, biomarkers etc. etc. There is a plan for patient interaction but it may have been a bit slow to get off the ground. That may be understandable while the group has been getting itself sorted but perhaps it is time to get lines of communication established. A central part of the EUROMENE cost project is to define what research is needed and how to get collaborations set up. Patient input ought to be an important part of that. I am very happy to try to keep this forum informed of EUROMENE news but there might be an opportunity for a patient (or carer) to get more directly involved in dialogue. The UK is already well represented at meetings and someone from maybe France or the Low Countries might be ideal. At this stage I am only putting this out as an informal idea but my impression is that the EUROMENE researchers would very much welcome closer patient involvement. There is a EUROMENE website: http://www.euromene.eu which may not be that brilliant, but at least it shows a few smiley researcher faces.