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CNN: Escape from the Mayo Clinic: Parents break teen out of world-famous hospital

Discussion in 'Health News and Research unrelated to ME/CFS' started by c37, Aug 13, 2018.

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  1. c37

    c37 Established Member

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    18
    Mayo neurosurgeons saved her life, but she and her parents were unhappy with the care she was receiving in the rehabilitation unit, and they say they repeatedly asked for her to be transferred.
    But they say Mayo refused to let her transfer to another hospital, even after a lawyer wrote a letter asking Mayo to make the arrangements.

    https://edition.cnn.com/2018/08/13/health/mayo-clinic-escape-2-eprise/index.html
     
  2. Mfairma

    Mfairma Established Member (Voting Rights)

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    You just beat me to posting this. Pretty wild and probably essential reading for parents considering bringing children with ME to Mayo. If they can do this in a more clear-cut case...
     
  3. ScottTriGuy

    ScottTriGuy Senior Member (Voting Rights)

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    I wonder if the Mayo Clinic is the same clinic Hillary Johnson originally writes about in 1989 but calls the "Dubois" clinic in her recently published piece called The Citadel: https://www.oslersweb.com/

    "Only the names and locations have been changed...a world-renowned multi-specialty clinic in the U.S."
     
    Last edited: Aug 15, 2018
  4. strategist

    strategist Senior Member (Voting Rights)

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    How much money was Mayo making from keeping this patient in the hospital against her will?
     
  5. Seven

    Seven Senior Member (Voting Rights)

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    But why the ME patient? I just wonder if we need to dig deeper and find a commonality. Are this plp being used to test something, what makes them target?
     
    adambeyoncelowe likes this.
  6. Inara

    Inara Senior Member (Voting Rights)

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    2,726
    This can't be true. What a sick world. I am shocked.

    Aren't you allowed to leave hospital whenever you wish? Wouldn't this be illegal imprisonment otherwise?

    But how shocking an incapacitation was prepared!
     
  7. Inara

    Inara Senior Member (Voting Rights)

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    2,726
    Could you explain? I don't understand.

    I think here lies one of the answers. A second one might be this:

     
  8. Mfairma

    Mfairma Established Member (Voting Rights)

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    I tend to assume money underlies it, but that what really drives such ridiculous overreaching is medical folk developing certainty that they're right and, in this case, deciding only they know best and the parents should be shunted aside. I have difficulty imagining that money alone would drive such oblivious persistence at such a large institution, unless that particular hospital is in dire straits.
     
  9. Barry

    Barry Senior Member (Voting Rights)

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    7,441
    Some aspects of the medical profession seem obsessed with power, and to attract those who are. Nothing unique to the medical profession of course.
     
  10. Alvin

    Alvin Senior Member (Voting Rights)

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    This is insane.
    I do want to know why they did this, there has to be some reason they would go out of their way to torment a family and try to kidnap a patient. It could be as simple as a doctor who feels aggrieved but it merits a full investigation IMO
     
  11. Amw66

    Amw66 Senior Member (Voting Rights)

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    4,712
    Sounds very similar to the child with mitochondrial disease a couple of years ago , who was effectively held. It was the American christian right who instigated her release.
     
  12. Alvin

    Alvin Senior Member (Voting Rights)

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    I'm not familiar with that one but the christian right is not an ally you typically want.
     
  13. Amw66

    Amw66 Senior Member (Voting Rights)

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    Agreed - it was due to their focus on family rights and values.
     
    MEMarge, adambeyoncelowe and JaimeS like this.
  14. James

    James Established Member (Voting Rights)

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  15. cyclamen

    cyclamen Established Member (Voting Rights)

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    With under 18 years old this might happen in Germany too. I know personally two persons with POTS/ME/? whose parents lost guardianship after they wanted to take/took their child out of the clinic because their children got worse through treatment. The ? stands for: at the present still not properly diagnosed.
     
    Joh, Sly Saint, MEMarge and 9 others like this.
  16. Sisyphus

    Sisyphus Senior Member (Voting Rights)

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    Read the book, not the cover.
     
  17. Inara

    Inara Senior Member (Voting Rights)

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    Yes, I know, but to my knowledge, in most cases this involves psychiatry, e.g. forced admission to a psychiatric unit and psychiatric diagnoses. This isn't better though. This just explains my being surprised, because I always had the conviction one can leave the hospital whenever one wishes. But I should know better...at least in Germany there are (newer) laws who make it possible to imprison you in hospital for forced treatment (e.g. forced cancer operation) - but always on the basis of a psychiatric diagnosis.

    In this case, again, psychiatry was involved in the sense that the mother was called "mentally ill" (most probably for "provoking" a senior physicist) which formed the basis of trying to get a guardianship. This, at least, is a very classical example of what psychiatric diagnoses are and why psychiatric areas try to improve their popularity (with success).
     
    Last edited: Aug 14, 2018
    Invisible Woman and cyclamen like this.
  18. Mithriel

    Mithriel Senior Member (Voting Rights)

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    2,160
    Round about the time there was all that kerfuffle about Roy Meadows who's opinions got women imprisoned, people in the US said parents who seemed likely to sue a doctor or hospital for the way their child was being treated were increasingly being accused of Munchhausen's by proxy. All you needed to "diagnose" it was a parent who was "overly involved" in their child's care and who had a lot of medical knowledge. It didn't matter that the doctor was wrong a "good faith" diagnosis was a valid defence so using it deliberately had no comeback.

    This was used as a threat because, at the time anyway, an accusation could not be removed from a parent's record no matter if it was false or malicious and it often lead to all children being removed from the family.
     
  19. Inara

    Inara Senior Member (Voting Rights)

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    2,726
    Yes, @Mithriel, I experienced that in my family.
     
  20. Seven

    Seven Senior Member (Voting Rights)

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    This happens a lot on ME also, and some other brain disorders. Like what is common in this people where they get retained. Are they testing drugs on them, or do they have something unique?? Like we need to dig why they get retained, what makes them different.
     
    Inara likes this.

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