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Chronic Fatigue Syndrome - Motivational Video (not a recommendation)

Discussion in 'PsychoSocial ME/CFS News' started by Webdog, Apr 14, 2018.

  1. Webdog

    Webdog Senior Member (Voting Rights)

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    I'd make a comment, but this video pretty much speaks for itself. :dead:

    It's described as a motivational YouTube "Video we made for our Mental Health class" on Chronic Fatigue Syndrome. No mention as to whether it's a real or fictional account.

    It's the story of a man diagnosed with Chronic Fatigue Syndrome, who sees significant improvements in energy and mood by learning better time management and dramatically increasing aerobic exercise.

    In the video, his doctor reviews the Mayo Clinic website (which is still full of CBT/GET) and curiously doesn't seem to order any tests or specialist referrals.



    Note: Please exercise caution if drinking a hot beverage while watching this video.
     
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  2. petrichor

    petrichor Established Member (Voting Rights)

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    This is a video just made by some students for a class. I think it's better just to ignore it and not give it views. I don't really care if some students make a video for a class that misunderstands what CFS is.
     
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  3. Webdog

    Webdog Senior Member (Voting Rights)

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    I feel the content is relevant to "PsychoSocial ME/CFS News", and am leaving the original post and video link up.
     
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  4. EzzieD

    EzzieD Senior Member (Voting Rights)

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    It's a shame, it's a cute video that looks like much enthusiasm was put into it, but yes, it is totally wrong and I do care that some students made a video that misunderstands what ME/CFS is. It's out there on YouTube in the public domain for all to see, and the message anyone who happens across the video will get is that 'CFS' is just tiredness and can be easily overcome with a bit of motivation and, not with carefully-supervised-by-a-professional-therapist gently graded exercise (as the BPs-ers like to sell GET to make it sound harmless) but instead, with full-on intensive aerobic exercise such as gym workouts and going out running! It is giving out not just uninformed but seriously dangerous advice. Arrgghh. :wtf:
     
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  5. Trish

    Trish Moderator Staff Member

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    Just from that short video it's clear he was misdiagnosed. The symptoms he describes are tiredness, poor sleep, stress, depression, back pain and generally unfit.

    Not surprising getting his sons to help out more at home and going to the gym helped with those things, and I'm pleased for him that he found a solution. BUT it's horrendously misinformed. Not his fault, but shows the dangers of individuals who have been misdiagnosed telling their story and thinking it's right for everyone else.

    I wonder if there is any point in someone contacting him and explaining.
     
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  6. Webdog

    Webdog Senior Member (Voting Rights)

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    One of my reasons for posting this video is these students apparently went to what they thought was a reputable health content source: Mayo Clinic.

    Mayo Clinic definitely follows the PACE/GET/CBT/old CDC Toolkit model. Mayo also reviews their own content, so even a Healthwise update won't change their website.

    Although it's not stated who their CFS content editors are, the Chief Medical Editor is Sandhya Pruthi, M.D. Her interests, ironically, are "breast diseases and women's health". She's also on Twitter.

     
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  7. Barry

    Barry Senior Member (Voting Rights)

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    upload_2018-4-14_23-55-5.png
    I'd like to know where their peer-reviewed evidence is for that.
     
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  8. Webdog

    Webdog Senior Member (Voting Rights)

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