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CDC: Resources for Health Professionals

Discussion in 'General ME/CFS News' started by Simone, Dec 29, 2017.

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  1. Simone

    Simone Senior Member (Voting Rights)

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    CDC updated its "Information for Health Professionals" page in its ME/CFS section on Dec 15. The page now offers links to the following documents:

    - IOM report (& the supplemental documents)
    - IACFSME Primer
    - 2016 Canadian guideline (draws heavily on both the IOM report and IACFSME Primer)
    - 2017 Paediatric Primer

    I'm not sure how many of these were on the page before the update, but it's great to see CDC drawing on good quality documents! :)
    https://www.cdc.gov/me-cfs/healthcare-providers/index.html
     
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  2. Webdog

    Webdog Senior Member (Voting Rights)

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    The page still says "New content coming end of 2017." If so, they will have to publish it over the weekend. :rofl:
     
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  3. Simone

    Simone Senior Member (Voting Rights)

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    I noticed that too. Given that the page was updated on Dec, it's unclear whether there is more to come, or whether the Dec 15 update was the new content referred to, and whoever updated the page just forgot to remove that sentence. I'm inclined to think it's the latter.
     
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  4. Webdog

    Webdog Senior Member (Voting Rights)

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    I agree with you.

    Still, the page gives the impression that after nearly a year of "working" on this, the CDC just threw up some links to external sites and didn't even bother to proofread the page. Minimal effort expended.

    On the plus side, they aren't bad links.
     
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  5. Medfeb

    Medfeb Established Member (Voting Rights)

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    @Webdog and @Simone - the CDC was originally planning on providing additional material for health case providers by the end of 2017 but I understand this material is now coming sometime in early 2018.

    As far as this page - not sure but I think they might have added in links to individual parts of the IOM report. They also added the announcement of the public review period of the common data elements project
     
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  6. Esther12

    Esther12 Senior Member (Voting Rights)

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    Thanks for the info - and welcome over to S4ME!
     
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  7. Webdog

    Webdog Senior Member (Voting Rights)

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    Thanks for the info.

    If I recall correctly, the CDC update material was scheduled to be available summer 2017, then delayed to end of 2017. Now it’s early 2018?

    Why the continued delays?
     
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  8. Andy

    Andy Committee Member

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  9. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    Someone on a Facebook group I'm on posted that none of this years updates have been applied to CDC web content in Spanish yet so it still has GET in it.
     
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  10. Webdog

    Webdog Senior Member (Voting Rights)

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    The Wayback Machine doesn't mention summer 2017, only end of 2017. Thanks for the link, @Andy.

    That should settle it, and yet...

    A PR forum post by medfeb states "So far, the update is just the page for the general public. The healthcare providers version to follow this summer."

    http://forums.phoenixrising.me/inde...page-updated-30th-may-2017.52703/#post-872664

    But I don't know where medfeb got their info either. A mystery indeed.


    PS: The Internet Archive (home of the Wayback Machine) is very close to me, and its founder, Brewster Kahle is very well known for hiring the disabled. He recently got an award at San Francisco City Hall for his efforts.
     
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  11. Simone

    Simone Senior Member (Voting Rights)

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    Yes, not much effort expended.
     
  12. Webdog

    Webdog Senior Member (Voting Rights)

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    Part of my frustration with the CDC is that while they delay, major healthcare providers such as the Mayo Clinic and Kaiser Permanente (11 million members!) continue to recommend GET and CBT for ME/CFS as if nothing has changed.

    ETA: A couple current Kaiser Permanente links. Caution: reading these may increase your blood pressure. :mad:
    This info comes from Healthwise, so you'll find identical on other provider sites and places such as WebMD.
     
    Last edited: Jan 4, 2018
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