BACME, National Conference 14-15th March 2018, ‘Changing Times’

https://www.bacme.info/upcoming-events, information from https://www.bacme.info/civicrm/event/info?id=2 (file will automatically download if this link is followed).



National Conference 14-15th March 2018, Liverpool

‘Changing Times’



The Science…

Prof Ben Z Katz, Children’s Hospital of Chicago, USA

Paediatric chronic fatigue syndrome after Epstein-Barr virus infection.

Dr Gerard Clarke, University College Cork, Ireland

Brain-gut-microbiome axis, stress and IBS.

Dr Emma Dures, University of the West of England, Bristol, UK

Support for self-management to reduce fatigue in arthritis.

Prof Per Fink, Aarhus University, Denmark

and

Dr Joshua D Milner, National Institute of Allergy and Infectious Disease, USA

IN DEBATE: psychology vs biology: how can we meet and move forward?



Plus: research update by Deb Roberts and panel, scientific posters and prize-winner presentation.


The Skills…

Workshop options include:

Fiona Wright, occupational therapist Mindfulness

Deborah Taylor, occupational therapist Therapy outcome measures

Dr Maria Loades, clinical psychologist/lecturer Anxiety and depression in paediatric CFS/ME

Dr Lucy Clark, exercise physiologist GETSET

Dr Vikki McKeever, GP with special interest Clinical conundrums

Plus: another option and larger workshop(s) TBC

The Services…

Rob Coster, NHS England Specialist Care Programme, UK

How are specialist services commissioned?

David Butcher, Optimum Health Clinic, UK

The 2020health report on the costs of CFS/ME to society.

Dr Pawel Zalewski, Nicolaus Copernicus University, Poland

CFS/ME in Poland: identifying need and developing services.

Plus: BACME national services survey, service narrative posters, and prize-winning presentation.


The Society…

Spread throughout the conference will be several opportunities to get involved in the future direction of BACME, to vote on surveys, and in the BACME AGM.

Survey topics include: merging our national conference with the UK CFS/ME Research Collaborative (CMRC); and, how best to meet the training and educational needs of our members.

Networking breaks are built into our programme, and there will also be a free drinks reception with local musicians.

There will be no conference dinner to allow everyone the opportunity of eating out in smaller groups, and enjoying this exciting and historic city.


**Early Bird Prices available NOW!!!**

Until Friday 19th January 2018 5pm

Members £250 full / £138 daily

Non-members £310 full / £178 daily


Mercure Atlantic Tower Hotel has reduced room rates for delegates at £95 per night until end 2017.

The Liverpool Tourist information centres and Visit Liverpool will be happy to advise on other accommodation and restaurants, and assist with reservations.

See www.visitliverpool.com

 

I thought there was a number of WTF moments just in the simple conference details.

MEpedia has this on Milner

And in response to "psychology vs biology: how can we meet and move forward?", I would suggest psychology should get the heck out of the way and allow biology to move forward by itself. Psychologists have done enough harm, it's time for the adults to actually get on with the job of figuring ME out.

 

Answer: Get out of where you never belonged, and finally make way for biology. The presumption of meeting is flawed.

 

I thought this was pretty telling about how independent each body is (or isn't).

 

This basically means when people want to debate us the following talk will describe the tactics that we use to avoid content debates at all cost and churn out nonsense about it being unhelpful to see things as either psychological or physiological and how to go around doing presentations like Crawley does them. How to avoid FOIs etc.

It will basically be a sales pitch on how they protect their market.

I could write this presentation for them now by listing some words like functional, biological, sleep hygiene, evidence based, militants, vexatious, then throw in some bla bla bla waffle to make the speech not seem like a hypnotist trick of sound bites for their chosen audience.

 

So, is there any proposition there?

BACME are such a shameful joke. I feel bad for any decent person sucked in to attending.

Just end your conference and stop pretending you have the ability to meet the training and educational needs of your members. It's time to recognise you've got life wrong and shut up shop.

 

It is not psychology versus biology. It is poor science versus good science.

This is not a negotiation to save the psychs' arses and give them a face-saving out, because they will just go and do it all over again to another bunch of unsuspecting patients. They need to learn the lesson, the hard way if necessary:

They must meet the technical and ethical standards of good science, including transparency, or get out of the game.

There is no alternative. That is how it must be done.

 

Sales pitch?! Instead of science! How could you be so cynical . You'll be suggesting the BPS papers are no better than double glazing glossy brochures next .

 

Seems to be a theme developing here ...

 

https://twitter.com/user/status/948862860234493952

https://twitter.com/user/status/948992593483923456

https://twitter.com/user/status/948994694264098816

https://twitter.com/user/status/948996672931102721

https://twitter.com/user/status/949609651347304448

 

https://twitter.com/user/status/949638871666610181

https://twitter.com/user/status/949647808608505856

 

"Buy now, pay later" seems appropriate. At least double glazing has a scientific basis with observable, measurable outcomes.

 

And it's transparent...

 

edit: wrong thread. I was talking to someone who was feeling pretty miserable after reading this conference report. They seemed to be hoping that it start with "Okay, we admit it, we've got things badly wrong."

 

Translation: What territory can psychologists still hold onto in the land grab for MECFS?

Edit: Oh, I see @large donner beat me to that comment!

 

On a brighter note, there are hints in the topic titles that some of the old guard are feeling threatened by recent developments in the field. They're not mentioning the actual elephant itself, but they're hinting at a large grey thing. This is encouraging, no?

 

I don't know. Honestly, regarding the psycho topic, I don't feel very encouraged.

 

Can all the ME organizations show up and do something ???? Record it all? Like as ME how do we counter act and monitor ???

Is funny they are regrouping to come w strategy. We need to tackle this soon