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A practical way to get more high quality research into ME/CFS and specialized care

Discussion in 'General Advocacy Discussions' started by Hoopoe, Mar 11, 2022.

  1. Hoopoe

    Hoopoe Senior Member (Voting Rights)

    Messages:
    5,234
    There are existing hospitals that specialize in rare diseases and who also do research.

    We as community could ask that these clinics (if they consent) to be given funding to add a unit for patients with poorly understood (but not necessarily rare) diseases with significant individual and societal impact like ME/CFS. Then the existing knowledge and infrastructure in these clinics could be used to try and make some progress in ME/CFS. The people there should be used to difficult cases. They might not want to manage every or even the average ME/CFS case but the more severe end of the spectrum, which seems fine to me.

    This might be something the EU could fund.

    Bad idea or a good idea?
     
    Last edited: Mar 11, 2022
    Samuel, EzzieD, nick2155 and 7 others like this.
  2. Samuel

    Samuel Senior Member (Voting Rights)

    Messages:
    620
    superb idea. diagnostic and classification/clusering issues with m.e, are odious imo.
     

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