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7 Nov AFME Unrest at Royal Free London

Discussion in 'General ME/CFS News' started by NelliePledge, Nov 5, 2017.

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  1. NelliePledge

    NelliePledge Moderator Staff Member

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  2. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    That's an interesting twist. But then I noticed that AfME were partners of some sort (sorry already can't remember specifics) on the Unrest site. Holgate & Chowdhury trying to shine up their image in the ME community. I'm inclined to not be in a great hurry to be forgiving of people who have been so willing to ignore PwME in order to have status with the establishment.

    They may have thought that they were even doing right but the tide of opinion now is such that it's easy to side with patients since that same tide is swelling and knocking the BPS off it's feet.

    Things will be as they will be and these two may be absorbed into the flow of people who are taking note (who previously knew nothing) and create a narrative that they were the good guys all along. But I think there are people (other than me) who will know different going forward.

    I hope someone can report back on the overall response and to the panel afterward and that SC & SH will do right by our community where they've failed previously. For me that means NO waffling. NO weasel words that can be interpreted with ambiguity or comments that sound good but are hollow of meaning.
     
  3. Esther12

    Esther12 Senior Member (Voting Rights)

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    I've totally given up on Sonya and Holgate doing the right thing. They have a clear responsibility to speak out against PACE, the way results were spun, and the way critics were smeared. I don't think that there's much chance of them doing that.
     
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  4. Adrian

    Adrian Administrator Staff Member

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    I've done that
     
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  5. NelliePledge

    NelliePledge Moderator Staff Member

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  6. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    Is there any record of the panel discussion?
     
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  7. Esther12

    Esther12 Senior Member (Voting Rights)

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