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5 Day Crash, POTS/OI related

Discussion in 'Post-Exertional Malaise, Fatigue, and Crashes' started by Matt (@DondochakkaB), Mar 7, 2018.

  1. Matt (@DondochakkaB)

    Matt (@DondochakkaB) Established Member (Voting Rights)

    Hi all,

    I'm writing this account of my recent crash, as I would like to compare notes with others.

    It started during the bad weather, something was falling down in my garden, so I pushed myself to try and fix it (which included lots of arms raised stuff). Like a fool, I had been unwell already for a while and recently pushed myself for a funeral.

    When I finished in the garden, I staggered back in and went straight to bed, I then realised I could not even pick up my own drink.

    So I spent the rest of the day in bed, and gradually got to the point where I could at least pick my own drink up again.

    Cue Friday, I get a bit of bad news from a friend, nothing too out of the ordinary. But the next thing I knew, I was flooding with adrenaline, and from that point on, the day to day stress I usually live with became an 'impending disaster(tm)'.

    Friday was probably the worst as I had trouble sleeping that night.

    From Saturday onwards, I started to go between periods of feeling very calm, to panicky. In the calm periods the panic made no sense to me at all. I then read an article about a patient who had experienced panic and was measured with low blood volume + high adrenaline ( https://t.co/8KenBH1gkv )

    Cue me doing as much research as I could from that point. My blood pressure monitor is kind of naff, but with my BP slightly higher than usual at one point, I took a punt that it was the adrenaline, and started dosing with Salt/Potassium water. Sure enough, my BP started to come down (I assume my body was starting to rely less on adrenaline to keep things going).

    So I was on and off calm/panicky for a few days, but the odd thing is, I slept like a baby. No problems whatsover. Then I learned that Caffeine basically dumps epinephrine in your blood...
    Then I realised that my panic events seemed line up very consistently with my ingestion of Caffeine.

    Basically I'm curious if anyone has had a similar experience, or if what I'm saying makes sense.
    Valentijn, Allele, Trish and 2 others like this.
  2. Ryan31337

    Ryan31337 Senior Member (Voting Rights)

    Hi Matt,

    This sound quite familiar to someone with POTS and a hyperadrenergic leaning.

    Before I started taking more care I experienced all of those things you mentioned. Pulsatile tinnitus, sleep disrupted by tachycardia and hyperventilation also tended to manifest the more I pushed - the anxiety was more a physiological sense of pressure and 'speeding up' than a fixation on mental problems as you might expect.

    The basics will help, stuff like: 3L of water and electrolyte mix daily, avoiding provoking symptoms by not standing/walking for prolonged periods, avoiding caffeine, controlling any tendency to over-breathe when upright. For me personally the real big help comes from taking Ivabradine, twice daily. I went off it cold-turkey for an exercise test recently and felt like I was going to have a panic attack after a couple of days!

    ahimsa, Allele, Trish and 2 others like this.

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