03 February 2017 Esther Crawley blog at NIHR: 'Doing what is right in a controversial field'

I just saw some stuff from NIHR promoting their Patient and Public involvement in research, and it reminded me of this annoying Crawley blog they posted earlier in the year, where she present herself as bravely producing useful research in the face of unreasonable opposition:

https://www.nihr.ac.uk/blogs/doing-what-is-right-in-a-controversial-field/5370

Also, here are some slides from a talk she gave at the NIHR (these are quite interesting - and present Sonya and Action for ME as on her side):

https://www.nihr.ac.uk/funding-and-support/documents/Day 1 - Career journey Ester Crawley.pdf

Crawley is also on an NIHR review board choosing which projects to fund. The projects were approved in the process she was connected to:

DRF-2016-09-021
Depression in paediatric chronic fatigue syndrome
(CFS/ME)
Fund
Conditional

https://www.nihr.ac.uk/funding-and-support/documents/Fellowships/NIHR DRF 2016 Public Minutes.pdf

DRF-2017-10-169

Developing an effective intervention for
younger children (5-11 years) with CFS/ME
Fund

https://www.nihr.ac.uk/funding-and-...s/NIHR-DRF-Fellowship-2017-Public-Minutes.pdf

Crawley has talked about how the NIHR 'saved' her. Oh great.

This is the NIHR page on patient and public involvement. I wonder if there's any way of getting them to engage in debate over the merits of Crawley's work?

https://www.nihr.ac.uk/about-us/how...e/patient-and-public-involvement-in-research/

 

Thought I'd also link to their announcement on FITNET-NHS, featuring Mary-Jane Willows and Stephen Holgate: https://www.nihr.ac.uk/news/testing-online-treatment-for-chronic-fatigue-syndrome-cfsme/4778

 

This blog seems to have been taken down?

Here's a copy of it at web.archive, though it doesn't seem available at NIHR anymore.

https://web.archive.org/web/2017021...g-what-is-right-in-a-controversial-field/5370

Crawley's other NIHR blog is available here: https://www.nihr.ac.uk/blog/worries-that-keep-you-awake-at-night/11067

 

It still there for me. (chrome w7)

 

Do you just mean the archived page I linked to?

The original page is here: https://www.nihr.ac.uk/blogs/doing-what-is-right-in-a-controversial-field/5370

 

I can't see the difference.

The link you posted that I quoted you, that said was down.

https://web.archive.org/web/2017021...g-what-is-right-in-a-controversial-field/5370

It is not. It is up.

however the last link you sent

The original page is here: https://www.nihr.ac.uk/blogs/doing-what-is-right-in-a-controversial-field/5370

is not working

Either I'm missing something or life is currently confusing.

 

In this post:

I was saying that the blog seemed to have been taken down from the NIHR site, and linked to an archived copy of it so that people could see what was originally there. Pages saved on web.archive are available there even when taken down from their original address.

I'll edit that post to make it clearer.