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03 February 2017 Esther Crawley blog at NIHR: 'Doing what is right in a controversial field'

Discussion in 'General ME/CFS News' started by Esther12, Jan 2, 2018.

  1. Esther12

    Esther12 Senior Member (Voting Rights)

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    I just saw some stuff from NIHR promoting their Patient and Public involvement in research, and it reminded me of this annoying Crawley blog they posted earlier in the year, where she present herself as bravely producing useful research in the face of unreasonable opposition:

    https://www.nihr.ac.uk/blogs/doing-what-is-right-in-a-controversial-field/5370

    Also, here are some slides from a talk she gave at the NIHR (these are quite interesting - and present Sonya and Action for ME as on her side):

    https://www.nihr.ac.uk/funding-and-support/documents/Day 1 - Career journey Ester Crawley.pdf

    Crawley is also on an NIHR review board choosing which projects to fund. The projects were approved in the process she was connected to:

    DRF-2016-09-021
    Depression in paediatric chronic fatigue syndrome
    (CFS/ME)
    Fund
    Conditional

    https://www.nihr.ac.uk/funding-and-support/documents/Fellowships/NIHR DRF 2016 Public Minutes.pdf

    DRF-2017-10-169

    Developing an effective intervention for
    younger children (5-11 years) with CFS/ME
    Fund

    https://www.nihr.ac.uk/funding-and-...s/NIHR-DRF-Fellowship-2017-Public-Minutes.pdf

    Crawley has talked about how the NIHR 'saved' her. Oh great.

    This is the NIHR page on patient and public involvement. I wonder if there's any way of getting them to engage in debate over the merits of Crawley's work?

    https://www.nihr.ac.uk/about-us/how...e/patient-and-public-involvement-in-research/
     
    Last edited: Jan 2, 2018
  2. Esther12

    Esther12 Senior Member (Voting Rights)

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  3. Esther12

    Esther12 Senior Member (Voting Rights)

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    Last edited: Sep 10, 2019
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  4. Wonko

    Wonko Senior Member (Voting Rights)

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  5. Esther12

    Esther12 Senior Member (Voting Rights)

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  6. Wonko

    Wonko Senior Member (Voting Rights)

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  7. Esther12

    Esther12 Senior Member (Voting Rights)

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    In this post:

    I was saying that the blog seemed to have been taken down from the NIHR site, and linked to an archived copy of it so that people could see what was originally there. Pages saved on web.archive are available there even when taken down from their original address.

    I'll edit that post to make it clearer.
     
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  8. Wonko

    Wonko Senior Member (Voting Rights)

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