Hi, I have everything ready for the Sunday Millions Missing event except one item. I want to create a poster to put up near our table. I ended...
My husband and I are planning a small #MillionsMissing event at our local library in Beaverton, Oregon. We plan to set up a small table in front...
Most of us are not able to go to Washington, DC for this advocacy week. But there are still ways to make your voices heard! Today I called both...
Earlier this month, NIH director Francis Collins and other agency officials held a meeting with five representatives from #MEAction. According to...
This Christmas, millions will be missing from parties and celebrations, because of the severity of ME. Yet the National Institute of Health and...
From an #MEAction email: A few months ago, #MEAction Executive Director Jennifer Brea released an open letter, outlining the importance of...
Congress to HHS: What's replacing CFSAC? ME/CFS must be represented! On September 6, the Secretary of Health and Human Services disbanded the...
I got an alert via email a couple days ago requesting folks in the USA to contact their congressional representatives. Signature deadline has...
A few things have begun to aggregate, so I figured I would start a new thread and post them here. First, #MEAction's general article on how to...
Here's a relatively easy advocacy action for patients in the USA: Ask your health care professional to watch Unrest online and get continuing...
After many, many months of writing, editing and revising, #MEAction Scotland is finally ready to launch its manifesto! Thank you to all the...
On August 27th, #MEAction published a petition calling for the U.S. Center for Disease Control and Prevention (CDC) to immediately halt its plan...
From the Unrest website: Watch Unrest and receive CME credit US healthcare providers can now watch Unrest and receive continuing education...
This past July, 2018, the U.S. Center for Disease Control and Prevention (CDC) launched new webpages about myalgic encephalomyelitis / chronic...
#MEAction: We need your help! Sign the #MEAction petition to stop the CDC from repeating a terrible mistake. They are attempting to quietly hire...
This month we want to honor the work of three women with #MEAction Scotland – Emma Shorter, Kim Gurav and Janet Sylvester – who have done an...
New(ish) caregivers' guide by #MEAction #MEAction has crowdsourced the advice in this guide and companion brochure from caregivers who care for...
#ME Action Network have just announced a fundraiser for a U.K. organiser. “to support another year of mass awareness, medical and scientific...
Sign the MEAction letter to Francis Collins to increase investment in ME research (Global) Ask Congress to support people with ME. Using our...
Our plan calls for significantly ramping up research funding to equal the disease burden, which studies approximate at $190 to $250 million. Our...
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