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meaction

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  1. InitialConditions
    Thread

    Jen Brea to step down as Executive Director of MEAction to focus on health

    https://www.meaction.net/2020/11/12/important-news-from-jennifer-brea/?fbclid=IwAR3_GgqUDp3qe3woHXjeH04-n_sdapO-xKepc1EvJ4Gz0TTvCLXmo12st0U...
    Thread by: InitialConditions, Nov 12, 2020, 5 replies, in forum: General ME/CFS News
  2. Sly Saint
    Thread

    #MEAction: PACING AND MANAGEMENT GUIDE FOR ME/CFS

    https://www.meaction.net/wp-content/uploads/2020/10/Pacing-and-Management-Guide-for-ME_CFS-8.pdf
    Thread by: Sly Saint, Oct 28, 2020, 11 replies, in forum: General ME/CFS News
  3. Kalliope
    Thread

    #MEAction: Here's what happened at the CDC's sep. 2020 ME/CFS meeting

    On Wednesday, September 23 the CDC helt its ME/CFS Stakeholder Engagement and Communication (SEC) conference call ant the #MEAction community...
    Thread by: Kalliope, Sep 26, 2020, 4 replies, in forum: General ME/CFS News
  4. ahimsa
    Thread

    #MEAction: Meet the scientist: Dr. Lucinda Bateman

    #MEAction has posted an interview with Dr. Lucinda Batemen of the Bateman Horne Centre of Excellence (BHC) for ME/CFS and Fibromyalgia. Dr....
    Thread by: ahimsa, Feb 19, 2020, 0 replies, in forum: General ME/CFS News
  5. ahimsa
    Thread

    #MEAction UK: "Take ME Seriously" project needs comments & signatures to send to NICE

    #MEAction UK has a new project called "Take ME Seriously" Update: Anyone can join in this advocacy action. It is not just for UK residents. They...
    Thread by: ahimsa, Feb 7, 2020, 14 replies, in forum: Advocacy Action Alerts
  6. ahimsa
    Thread

    MEAction: NIH Receives Surprise Holiday Gift from ME Community

    MEAction has an article reporting on their "Cards to Koroshetz" campaign. They asked folks to send holiday cards to Dr. Koroshetz, Director of...
    Thread by: ahimsa, Jan 11, 2020, 0 replies, in forum: Advocacy Projects and Campaigns
  7. ahimsa
    Thread

    #MEAction: Dr. Koroshetz Declines to Take Urgent Action for ME. Read His Response and Take Action!

    An excerpt from today's ME Action email about the #NotEnough4ME campaign: On Nov. 4th, NINDS Institute director, Dr. Walter Koroshetz, responded...
    Thread by: ahimsa, Nov 18, 2019, 28 replies, in forum: Advocacy Action Alerts
  8. Andy
    Thread

    MEAction: "DEMYSTIFYING THE DIAGNOSTIC CRITERIA FOR ME AND RELATED DISEASE"

    We know that our community continues to wrestle over the appropriate diagnostic criteria for myalgic encephalomyelitis to the point that it has...
    Thread by: Andy, Nov 14, 2019, 54 replies, in forum: Diagnostic Guidelines
  9. ahimsa
    Thread

    ME Activist Evelien Van Den Brink Testifies before EU Parliament

    News about Evelien's testimony to Parliament has already been posted on the thread about the EU Petition but I thought the testimony deserved its...
    Thread by: ahimsa, Oct 5, 2019, 1 replies, in forum: General Advocacy Discussions
  10. rvallee
    Thread

    Congressman Jack Bergman becomes Champion for ME

    Up with the Marines! We are so pleased that Congressman Jack Bergman (R, MI-1), a former Marine general, has become a champion for people with...
    Thread by: rvallee, Jun 14, 2019, 7 replies, in forum: Advocacy Projects and Campaigns
  11. ahimsa
    Thread

    Introducing #MEAction’s 2019 ME Research Summary

    We are thrilled to announce the release of our 2019 research summary reviewing the most current and important research into myalgic...
    Thread by: ahimsa, Jun 13, 2019, 16 replies, in forum: Advocacy Projects and Campaigns
  12. ahimsa
    Thread

    Need help with poster for Millions Missing event

    Hi, I have everything ready for the Sunday Millions Missing event except one item. I want to create a poster to put up near our table. I ended...
    Thread by: ahimsa, May 8, 2019, 14 replies, in forum: Advocacy Projects and Campaigns
  13. ahimsa
    Thread

    Need some input for a #MillionsMissing event in Beaverton, OR

    My husband and I are planning a small #MillionsMissing event at our local library in Beaverton, Oregon. We plan to set up a small table in front...
    Thread by: ahimsa, Apr 22, 2019, 12 replies, in forum: Advocacy Projects and Campaigns
  14. ahimsa
    Thread

    USA: ME/CFS Advocacy Week - Call or email your senators

    Most of us are not able to go to Washington, DC for this advocacy week. But there are still ways to make your voices heard! Today I called both...
    Thread by: ahimsa, Apr 3, 2019, 6 replies, in forum: Advocacy Action Alerts
  15. Andy
    Thread

    David Tuller: Trial By Error: “Talk is Cheap,” Patients Tell NIH

    Earlier this month, NIH director Francis Collins and other agency officials held a meeting with five representatives from #MEAction. According to...
    Thread by: Andy, Dec 27, 2018, 93 replies, in forum: General ME/CFS News
  16. Andy
    Thread

    MEAction: " All I want for Christmas is #ScienceNotStigma"

    This Christmas, millions will be missing from parties and celebrations, because of the severity of ME. Yet the National Institute of Health and...
    Thread by: Andy, Dec 9, 2018, 13 replies, in forum: Advocacy Action Alerts
  17. Andy
    Thread

    #MEAction: "Let's start the values and policies process!"

    From an #MEAction email: A few months ago, #MEAction Executive Director Jennifer Brea released an open letter, outlining the importance of...
    Thread by: Andy, Dec 4, 2018, 3 replies, in forum: Advocacy Projects and Campaigns
  18. Andy
    Thread

    Solve ME/CFS Initiative: "Congress to HHS: What's replacing CFSAC?" [easy form to fill in to contact your reps]

    Congress to HHS: What's replacing CFSAC? ME/CFS must be represented! On September 6, the Secretary of Health and Human Services disbanded the...
    Thread by: Andy, Dec 4, 2018, 8 replies, in forum: Advocacy Action Alerts
  19. ahimsa
    Thread

    USA advocacy: Ask Congress to sign letter to HHS - NEW deadline Dec. 12

    I got an alert via email a couple days ago requesting folks in the USA to contact their congressional representatives. Signature deadline has...
    Thread by: ahimsa, Dec 3, 2018, 3 replies, in forum: Advocacy Action Alerts
  20. JaimeS
    Thread

    #MEAction ideas for Giving Tuesday

    A few things have begun to aggregate, so I figured I would start a new thread and post them here. First, #MEAction's general article on how to...
    Thread by: JaimeS, Nov 27, 2018, 0 replies, in forum: Fundraising
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