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meaction

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  1. Amw66
    Thread

    MEAction Scotland - Stakeholder review of NICE 2021 ME/CFS Guideline to prepare for Scottish implementation - deadline 1 March 2022

    Copied from UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion From what I know about MEAction Scotland, they...
    Thread by: Amw66, Feb 23, 2022, 1 replies, in forum: Advocacy Projects and Campaigns
  2. ahimsa
    Thread

    Walktober for ME Action: A Day To Walk For You (October 30)

    https://www.mightycause.com/story/Walktober A nonprofit fundraiser supporting Myalgic Encephalomyelitis Action Network Inc Welcome to Greg...
    Thread by: ahimsa, Oct 30, 2021, 2 replies, in forum: Fundraising
  3. ahimsa
    Thread

    USA: News from #MEAction

    This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/ The November and December...
    Thread by: ahimsa, Nov 9, 2017, 44 replies, in forum: News from organisations
  4. InitialConditions
    Thread

    Jen Brea to step down as Executive Director of MEAction to focus on health

    https://www.meaction.net/2020/11/12/important-news-from-jennifer-brea/?fbclid=IwAR3_GgqUDp3qe3woHXjeH04-n_sdapO-xKepc1EvJ4Gz0TTvCLXmo12st0U...
    Thread by: InitialConditions, Nov 12, 2020, 5 replies, in forum: General ME/CFS news
  5. Sly Saint
    Thread

    #MEAction: PACING AND MANAGEMENT GUIDE FOR ME/CFS

    https://www.meaction.net/wp-content/uploads/2020/10/Pacing-and-Management-Guide-for-ME_CFS-8.pdf
    Thread by: Sly Saint, Oct 28, 2020, 11 replies, in forum: General ME/CFS news
  6. ahimsa
    Thread

    #MEAction: Meet the scientist: Dr. Lucinda Bateman

    #MEAction has posted an interview with Dr. Lucinda Batemen of the Bateman Horne Centre of Excellence (BHC) for ME/CFS and Fibromyalgia. Dr....
    Thread by: ahimsa, Feb 19, 2020, 0 replies, in forum: General ME/CFS news
  7. ahimsa
    Thread

    #MEAction UK: "Take ME Seriously" project needs comments & signatures to send to NICE

    #MEAction UK has a new project called "Take ME Seriously" Update: Anyone can join in this advocacy action. It is not just for UK residents. They...
    Thread by: ahimsa, Feb 7, 2020, 14 replies, in forum: Advocacy Action Alerts
  8. ahimsa
    Thread

    #MEAction: Dr. Koroshetz Declines to Take Urgent Action for ME. Read His Response and Take Action!

    An excerpt from today's ME Action email about the #NotEnough4ME campaign: On Nov. 4th, NINDS Institute director, Dr. Walter Koroshetz, responded...
    Thread by: ahimsa, Nov 18, 2019, 28 replies, in forum: Advocacy Action Alerts
  9. Andy
    Thread

    MEAction: "DEMYSTIFYING THE DIAGNOSTIC CRITERIA FOR ME AND RELATED DISEASE"

    We know that our community continues to wrestle over the appropriate diagnostic criteria for myalgic encephalomyelitis to the point that it has...
    Thread by: Andy, Nov 14, 2019, 54 replies, in forum: Diagnostic Criteria and Naming Discussions
  10. ahimsa
    Thread

    USA: ME/CFS Advocacy Week - Call or email your senators

    Most of us are not able to go to Washington, DC for this advocacy week. But there are still ways to make your voices heard! Today I called both...
    Thread by: ahimsa, Apr 3, 2019, 6 replies, in forum: Advocacy Action Alerts
  11. Andy
    Thread

    David Tuller: Trial By Error: “Talk is Cheap,” Patients Tell NIH

    Earlier this month, NIH director Francis Collins and other agency officials held a meeting with five representatives from #MEAction. According to...
    Thread by: Andy, Dec 27, 2018, 93 replies, in forum: General ME/CFS news
  12. Andy
    Thread

    MEAction: " All I want for Christmas is #ScienceNotStigma"

    This Christmas, millions will be missing from parties and celebrations, because of the severity of ME. Yet the National Institute of Health and...
    Thread by: Andy, Dec 9, 2018, 13 replies, in forum: Advocacy Action Alerts
  13. Andy
    Thread

    Solve ME/CFS Initiative: "Congress to HHS: What's replacing CFSAC?" [easy form to fill in to contact your reps]

    Congress to HHS: What's replacing CFSAC? ME/CFS must be represented! On September 6, the Secretary of Health and Human Services disbanded the...
    Thread by: Andy, Dec 4, 2018, 8 replies, in forum: Advocacy Action Alerts
  14. ahimsa
    Thread

    USA advocacy: Ask Congress to sign letter to HHS - NEW deadline Dec. 12

    I got an alert via email a couple days ago requesting folks in the USA to contact their congressional representatives. Signature deadline has...
    Thread by: ahimsa, Dec 3, 2018, 3 replies, in forum: Advocacy Action Alerts
  15. JaimeS
    Thread

    #MEAction ideas for Giving Tuesday

    A few things have begun to aggregate, so I figured I would start a new thread and post them here. First, #MEAction's general article on how to...
    Thread by: JaimeS, Nov 27, 2018, 0 replies, in forum: Fundraising
  16. Joh
    Thread

    US healthcare providers receive CME credit for watching Unrest and new diagnosis and management video

    From the Unrest website: Watch Unrest and receive CME credit US healthcare providers can now watch Unrest and receive continuing education...
    Thread by: Joh, Sep 24, 2018, 15 replies, in forum: General ME/CFS news
  17. Joh
    Thread

    Petition: Stop CDC from hiring shoddy contractor for ME treatment guidelines

    #MEAction: We need your help! Sign the #MEAction petition to stop the CDC from repeating a terrible mistake. They are attempting to quietly hire...
    Thread by: Joh, Aug 27, 2018, 59 replies, in forum: Petitions
  18. Andy
    Thread

    #MEAction: Volunteer of the Month: a Scottish Trio

    This month we want to honor the work of three women with #MEAction Scotland – Emma Shorter, Kim Gurav and Janet Sylvester – who have done an...
    Thread by: Andy, Jun 30, 2018, 3 replies, in forum: General ME/CFS news
  19. Joh
    Thread

    Caregivers' guide by #MEAction

    New(ish) caregivers' guide by #MEAction #MEAction has crowdsourced the advice in this guide and companion brochure from caregivers who care for...
    Thread by: Joh, Jun 14, 2018, 5 replies, in forum: Caregiver support
  20. Andy
    Thread

    #MEAction: Four things you can do to advance the fight for health equality

    Sign the MEAction letter to Francis Collins to increase investment in ME research (Global) Ask Congress to support people with ME. Using our...
    Thread by: Andy, May 16, 2018, 12 replies, in forum: Advocacy Action Alerts
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