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  1. arewenearlythereyet
    Post

    Who Agrees That GRADE is (a) unjustified in theory and (b) wrong in practice?

    I can’t say I am well read enough on the detail of GRADE but I would say that whatever system is used to put a ‘value’ on research should...
    Post by: arewenearlythereyet, Mar 4, 2021 at 9:12 AM in forum: Information for NICE guidelines
  2. arewenearlythereyet
    Post

    The faecal metabolome in COVID-19 patients is altered and associated with clinical features and gut microbes, Lv et al, 2021

    I’ve not read this but the abstract looks to be stating the bleeding obvious ....when people get sick their digestive system is thrown out of...
    Post by: arewenearlythereyet, Mar 3, 2021 at 1:56 PM in forum: Epidemics (including Covid-19)
  3. arewenearlythereyet
    Post

    Paul Garner on Long Covid and ME/CFS. BMJ articles.

    I thought this was ...thought provoking. I’ve always tried to adopt an appropriate arguing style to suit an occasion ...it’s generally ended up...
    Post by: arewenearlythereyet, Mar 3, 2021 at 11:27 AM in forum: Epidemics (including Covid-19)
  4. arewenearlythereyet
    Post

    BBC article: disabled influencers, including one with ME

    I thought I would post an additional clarifying note since my comments on the BBC interview appear to have been muddled with the personalities...
    Post by: arewenearlythereyet, Mar 1, 2021 at 10:56 AM in forum: General ME/CFS News
  5. arewenearlythereyet
    Post

    BBC article: disabled influencers, including one with ME

    I viewed her interview and I can say she came across badly ...not sure how recommending Tesco products for money helps people with ME? I’m not...
    Post by: arewenearlythereyet, Feb 26, 2021 at 8:19 PM in forum: General ME/CFS News
  6. arewenearlythereyet
    Post

    Covid-19 vaccines and vaccinations

    Yes I will get vaccinated at a vaccination centre somewhere else I believe ... the gp will just be my booking agent :) good luck
    Post by: arewenearlythereyet, Feb 26, 2021 at 2:18 PM in forum: Epidemics (including Covid-19)
  7. arewenearlythereyet
    Post

    Covid-19 vaccines and vaccinations

    I rang up earlier this week in my area (Cambridgeshire) since a work colleague had rang on Monday and been booked for a jab on Friday despite not...
    Post by: arewenearlythereyet, Feb 26, 2021 at 9:49 AM in forum: Epidemics (including Covid-19)
  8. arewenearlythereyet
    Post

    Can we call ME/CFS a disease?

    I think changing ME, epilepsy or whatever to a different definition won’t make them less stigmatised. This seems to miss the point. Calling it a...
    Post by: arewenearlythereyet, Feb 25, 2021 in forum: General Advocacy Discussions
  9. arewenearlythereyet
    Post

    BBC article: disabled influencers, including one with ME

    I think this is an age thing. I refuse to have a Facebook account, don’t Twitter etc. I even declined to join a WhatsApp group with work...
    Post by: arewenearlythereyet, Feb 25, 2021 in forum: General ME/CFS News
  10. arewenearlythereyet
    Post

    Gulf War Illness - causes

    My personal view on this is that we need to see some significant prevalence studies on “toxins”. Until then there will always be conspiracy...
    Post by: arewenearlythereyet, Feb 24, 2021 in forum: BioMedical ME/CFS News
  11. arewenearlythereyet
    Post

    New Garmin “High Intensity Exercise” monitoring and what it showed my body is doing

    I have a Fitbit and have noticed the same variability in heart rate although on a different scale. In fact I can reasonably predict my ME symptom...
    Post by: arewenearlythereyet, Feb 24, 2021 in forum: Post-Exertional Malaise, Fatigue, and Crashes
  12. arewenearlythereyet
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    surely an incentive payment and screening questionnaire is not beyond the capabilities of OMF. (Commonplace for any cohort selection)? this is...
    Post by: arewenearlythereyet, Feb 22, 2021 in forum: BioMedical ME/CFS Research
  13. arewenearlythereyet
    Post

    ME/CFS facts to help with employment

    I think this is quite important. For me I really struggled to find any help on how to manage the fluctuating nature of ME at work. Having...
    Post by: arewenearlythereyet, Feb 22, 2021 in forum: Work, Finances and Disability Insurance
  14. arewenearlythereyet
    Post

    ME/CFS facts to help with employment

    Just thought I would pop in and thank everyone for their comments. I’m still digesting but having so many experiences already has been really...
    Post by: arewenearlythereyet, Feb 20, 2021 in forum: Work, Finances and Disability Insurance
  15. arewenearlythereyet
    Post

    ME/CFS facts to help with employment

    I can only speak for my employer but I would say it’s split. Some members of the board believe adopting a blended approach post lockdown is the...
    Post by: arewenearlythereyet, Feb 19, 2021 in forum: Work, Finances and Disability Insurance
  16. arewenearlythereyet
    Post

    ME/CFS facts to help with employment

    Yes it’s got quite a bit on general prevalence. The thing I found frustrating is it doesn’t really help on employment issues ...it’s more about...
    Post by: arewenearlythereyet, Feb 19, 2021 in forum: Work, Finances and Disability Insurance
  17. arewenearlythereyet
    Post

    ME/CFS facts to help with employment

    I’ll start by posting the draft nice guidelines https://www.nice.org.uk/guidance/gid-ng10091/documents/draft-guideline#page37 this has a...
    Post by: arewenearlythereyet, Feb 19, 2021 in forum: Work, Finances and Disability Insurance
  18. arewenearlythereyet
    Post

    ME/CFS facts to help with employment

    Ear marked for summary
    Post by: arewenearlythereyet, Feb 19, 2021 in forum: Work, Finances and Disability Insurance
  19. arewenearlythereyet
    Thread

    ME/CFS facts to help with employment

    Hi I’m currently negotiating with my employer and formalising reasonable adjustments. I’ve taken a look at threads here and not surprisingly...
    Thread by: arewenearlythereyet, Feb 19, 2021, 35 replies, in forum: Work, Finances and Disability Insurance
  20. arewenearlythereyet
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    I thought they had ditched that idea since they found the blood needed a lab to prepare the sample before it could be tested? This would make...
    Post by: arewenearlythereyet, Feb 18, 2021 in forum: BioMedical ME/CFS Research
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