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  1. cassava7
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    I believe she listened in on the call and could ask questions, possibly as a patient representative, but I'm uncertain that she has a much of an...
    Post by: cassava7, Feb 24, 2021 at 3:41 PM in forum: Epidemics (including Covid-19)
  2. cassava7
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    What does Dr Pope do of the recent studies on Long Covid showing that some of the most prevalent symptoms of LC are those of ME, including...
    Post by: cassava7, Feb 24, 2021 at 3:27 PM in forum: Epidemics (including Covid-19)
  3. cassava7
    Post

    Open Analysis of Post-exertional Malaise Using a Two-day CPET in People With ME/CFS 2021 Ithaca College

    Dr Maureen Hanson presented the preliminary results of this study at the CDC stakeholder call/webinar in September 2020 (slides 29 to 39):...
    Post by: cassava7, Feb 23, 2021 at 10:44 AM in forum: Recruitment into current ME/CFS research studies
  4. cassava7
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    I agree. I’m not against the appropriation at all, I would only like that people with ME be acknowledged when these terms are used. On the other...
    Post by: cassava7, Feb 21, 2021 at 8:14 PM in forum: Epidemics (including Covid-19)
  5. cassava7
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    It is very disheartening. ME patients have been invisible for decades, and now the Long Covid community is appropriating itself the terms that we...
    Post by: cassava7, Feb 21, 2021 at 6:17 PM in forum: Epidemics (including Covid-19)
  6. cassava7
    Post

    Tweets from Bhupesh Prusty

    [MEDIA] "The first grant that came our way last week is funded by ME Research UK. I am so excited to get this support from Scotland. Scotland...
    Post by: cassava7, Feb 19, 2021 at 11:02 AM in forum: BioMedical ME/CFS News
  7. cassava7
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    Blood tests to understand the immunology of Long Covid and imaging, on a large cohort. Measuring objective outcomes such as HR, oxygen saturation,...
    Post by: cassava7, Feb 19, 2021 at 10:41 AM in forum: Epidemics (including Covid-19)
  8. cassava7
    Post

    Tweets from Bhupesh Prusty

    [MEDIA] [MEDIA]
    Post by: cassava7, Feb 18, 2021 in forum: BioMedical ME/CFS News
  9. cassava7
    Post

    UK: Opportunity to join a National Institute for Health Research advisory research committee, closes 15th March 2021

    The NIHR has a funding and awards website, you can search for their names: https://fundingawards.nihr.ac.uk/search Finding their other sources of...
    Post by: cassava7, Feb 18, 2021 in forum: General disability topics and advocacy
  10. cassava7
    Post

    UK: Opportunity to join a National Institute for Health Research advisory research committee, closes 15th March 2021

    Here's my humble suggestion for improving NIHR research and saving the UK government millions of pounds: stop funding Esther Crawley's work and...
    Post by: cassava7, Feb 17, 2021 in forum: General disability topics and advocacy
  11. cassava7
    Post

    meditation

    Before I came down with ME, I used to practice mindfulness meditation for 30-45 mins every day. I usually meditated in the evening, last thing...
    Post by: cassava7, Feb 16, 2021 in forum: Alternative Therapies
  12. cassava7
    Post

    From Paralysis to Fatigue: a critical review of Edward Shorter’s view on chronic fatigue syndrome - ME/CFS skeptic

    Excellent piece Michiel and Evelien. Nitpick: there is a broken link in this paragraph (on the word "Studies") If necessary here is a list of...
    Post by: cassava7, Feb 14, 2021 in forum: General ME/CFS News
  13. cassava7
    Post

    France: Guidelines for Post-Covid Syndrome, 2021, Haute Autorité de la Santé

    Blog post from Millions Missing France (Google Translate):...
    Post by: cassava7, Feb 14, 2021 in forum: Epidemics (including Covid-19)
  14. cassava7
    Post

    France: Guidelines for Post-Covid Syndrome, 2021, Haute Autorité de la Santé

    The HAS doesn't rate evidence stringently for rapid replies so that they can be put out quickly. Here is a translation of their methods (last page...
    Post by: cassava7, Feb 12, 2021 in forum: Epidemics (including Covid-19)
  15. cassava7
    Post

    France: Guidelines for Post-Covid Syndrome, 2021, Haute Autorité de la Santé

    Yes, I'm not optimistic either. Millions Missing France was consulted and tried to push back against MUS and overzealous prescription of exercise...
    Post by: cassava7, Feb 12, 2021 in forum: Epidemics (including Covid-19)
  16. cassava7
    Post

    France: Guidelines for Post-Covid Syndrome, 2021, Haute Autorité de la Santé

    This is only an annex to the full "rapid reply" from the HAS:...
    Post by: cassava7, Feb 12, 2021 in forum: Epidemics (including Covid-19)
  17. cassava7
    Post

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study): 2021 Stephenson and Crawley

    :(:cry::(:cry:
    Post by: cassava7, Feb 8, 2021 in forum: Epidemics (including Covid-19)
  18. cassava7
    Post

    Exploring the prevalence of Pompe’s disease in patients diagnosed with CFS/ME: 2021 Crawley

    In Q4 2020, the FDA and the EMA (EU equivalent of FDA) accepted Sanofi's submissions for regulatory approval for its new drug for Pompe's disease,...
    Post by: cassava7, Feb 8, 2021 in forum: BioMedical ME/CFS Research
  19. cassava7
    Post

    Nat Commun - Early-life-trauma triggers interferon-β resistance and neurodegeneration in a MS model via down regulated β1-adrenergic signaling - Khaw

    In mice. ETA, from the methods: Not only is this horrible but it is also a completely unrealistic model for humans... I don't know exactly at...
    Post by: cassava7, Feb 7, 2021 in forum: Health News and Research unrelated to ME/CFS
  20. cassava7
    Post

    The benefits of Qigong exercise for symptoms of fatigue A protocol for systematic review and meta-analysis, Wang et al, 2021

    An assumption from the authors before they even begin their review. Much like other "calm" exercises such as yoga, it's safe only for ME patients...
    Post by: cassava7, Feb 7, 2021 in forum: Alternative Therapies
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