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  1. Esther12
    Post

    Finnish Duodecim ME/CFS Guideline: Draft Published for Consultation

    So there is no evidence based treatment, but they know how to treat it? This is a mentality that worries me.
    Post by: Esther12, Feb 24, 2021 at 10:14 PM in forum: General ME/CFS News
  2. Esther12
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    It seems that we have such a poor understanding of what's happening that I don't feel comfortable giving any advice. More selfishly, I also worry...
    Post by: Esther12, Feb 24, 2021 at 5:52 PM in forum: Epidemics (including Covid-19)
  3. Esther12
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    I think that there's a lot of truth to that. Undoubtedly, some LC patients started with unfair attitudes about ME/CFS, and others a fair (though...
    Post by: Esther12, Feb 24, 2021 at 5:12 PM in forum: Epidemics (including Covid-19)
  4. Esther12
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    As you say, it's clear that Long Covid is a form of post-viral health problem. At the moment a lot of post-viral health problems are lumped in...
    Post by: Esther12, Feb 24, 2021 at 5:04 PM in forum: Epidemics (including Covid-19)
  5. Esther12
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    I suspect that keeping some distance between ME/CFS and Long-Covid is likely to be good for us. If Long Covid specific research finds anything...
    Post by: Esther12, Feb 24, 2021 at 4:40 PM in forum: Epidemics (including Covid-19)
  6. Esther12
    Post

    A clinical primer for the expected and potential post-COVID-19 syndromes, Wallit et al, 2021

    I'm not sure how accurate all their predictions on this will turn out to be.
    Post by: Esther12, Feb 23, 2021 at 11:12 PM in forum: Epidemics (including Covid-19)
  7. Esther12
    Post

    ME/CFS and gulf war illness patients exhibit increased humoral responses to herpesviruses-encoded dUTP, 2017, Halpin, Klimas, Fletcher, Ariza et al

    I wonder if, even if this holds up, it could just be something associated with ill health generally?
    Post by: Esther12, Feb 19, 2021 at 9:49 PM in forum: BioMedical ME/CFS Research
  8. Esther12
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    re Strain: [MEDIA]
    Post by: Esther12, Feb 18, 2021 in forum: Epidemics (including Covid-19)
  9. Esther12
    Post

    Post-COVID-19 Symptom Burden: What is Long-COVID and How Should We Manage It?, Sykes et al, 2021

    With covid 19 we've had a global pandemic, lock-downs, people being isolated from support (social, medical, psychological). It's a situation where...
    Post by: Esther12, Feb 12, 2021 in forum: Epidemics (including Covid-19)
  10. Esther12
    Post

    Study Protocol: Long-term Effects of COVID-19 in Adolescents (LoTECA), Wyller

    Wyller's history of misrepresenting his own results is enough of a problem for me. IMO the biggest problem with PACE was the researchers, and...
    Post by: Esther12, Feb 10, 2021 in forum: Epidemics (including Covid-19)
  11. Esther12
    Post

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study): 2021 Stephenson and Crawley

    Thanks. It looks like I've made a mistake, but then I cannot find a Stevenson with a 'v', and this one was a paediatric doctor, and one of his top...
    Post by: Esther12, Feb 10, 2021 in forum: Epidemics (including Covid-19)
  12. Esther12
    Post

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study): 2021 Stephenson and Crawley

    eidt: I didn't notice that the name was spelt differently, but it still looks like Terence Stevenson could be the new chair of the HRA?...
    Post by: Esther12, Feb 9, 2021 in forum: Epidemics (including Covid-19)
  13. Esther12
    Post

    Paul Garner on Long Covid and ME/CFS. BMJ articles.

    I agree with a lot of that (though personally I'm not that interested in any recovery stories), but I do think that it's even more complicated...
    Post by: Esther12, Feb 5, 2021 in forum: Epidemics (including Covid-19)
  14. Esther12
    Post

    Paul Garner on Long Covid and ME/CFS. BMJ articles.

    It's not that I'm deaf to the problems with tone, but I think that the way some have responded more to their interpretations of the tone, rather...
    Post by: Esther12, Feb 5, 2021 in forum: Epidemics (including Covid-19)
  15. Esther12
    Post

    Paul Garner on Long Covid and ME/CFS. BMJ articles.

    There seem to be a lot of assumptions in there that are not widely held by those with power in EBM, and over us: That the evidence is...
    Post by: Esther12, Feb 5, 2021 in forum: Epidemics (including Covid-19)
  16. Esther12
    Post

    Paul Garner on Long Covid and ME/CFS. BMJ articles.

    A pretty good explanation for 'why' is that some ME patients think it's okay to act appallingly. The problems with Garner's blog are far less...
    Post by: Esther12, Feb 5, 2021 in forum: Epidemics (including Covid-19)
  17. Esther12
    Post

    Paul Garner on Long Covid and ME/CFS. BMJ articles.

    Sorry - Evidence Based Medicine. It can be seen as an 'ideal/philosophy' underpinning an approach to medicine, it can still function as a label...
    Post by: Esther12, Feb 5, 2021 in forum: Epidemics (including Covid-19)
  18. Esther12
    Post

    Paul Garner on Long Covid and ME/CFS. BMJ articles.

    One other thing re Garner - as people keep noting, it's an N=1 personal story. It shouldn't matter than much. Why draw attention to it as if it's...
    Post by: Esther12, Feb 5, 2021 in forum: Epidemics (including Covid-19)
  19. Esther12
    Post

    Paul Garner on Long Covid and ME/CFS. BMJ articles.

    I take your point but alos think that to many people their roles as 'influential people' are a bit confused when they're just reporting their...
    Post by: Esther12, Feb 5, 2021 in forum: Epidemics (including Covid-19)
  20. Esther12
    Post

    Paul Garner on Long Covid and ME/CFS. BMJ articles.

    She makes a big thing of saying 'in moderation', which could be interpreted as making her claim pretty meaningless, but I certainly see Gerada as...
    Post by: Esther12, Feb 5, 2021 in forum: Epidemics (including Covid-19)
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