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  1. adambeyoncelowe
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    Thanks, I've got the HDQ now. I did start filling in the form, but it asked about what my study would be, how it would be administered, etc, and I...
    Post by: adambeyoncelowe, Feb 23, 2021 at 9:03 AM in forum: Epidemics (including Covid-19)
  2. adambeyoncelowe
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    If anyone gets hold of the HDQ, please let me know.
    Post by: adambeyoncelowe, Feb 21, 2021 at 10:06 AM in forum: Epidemics (including Covid-19)
  3. adambeyoncelowe
    Post

    Covid-19 vaccinations

    My whole family have had the Pfizer jab and none of us have had issues. Incidentally, the day after my jab, I woke up feeling really great, except...
    Post by: adambeyoncelowe, Feb 21, 2021 at 7:42 AM in forum: Epidemics (including Covid-19)
  4. adambeyoncelowe
    Post

    Chronic Illness: The Case of Chronic Fatigue Syndrome-Myalgic Encephalomyelitis, 2021, Jason et al

    Yippee-ki-yay, Mr. Falcon! ;)
    Post by: adambeyoncelowe, Feb 19, 2021 at 2:48 PM in forum: General ME/CFS News
  5. adambeyoncelowe
    Post

    Chronic Illness: The Case of Chronic Fatigue Syndrome-Myalgic Encephalomyelitis, 2021, Jason et al

    It's from 'God's hooks', referring to the nails driven through Jesus. Pleasanter than the original, I suppose. Compare with Zounds (God's wounds)...
    Post by: adambeyoncelowe, Feb 19, 2021 at 11:33 AM in forum: General ME/CFS News
  6. adambeyoncelowe
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    I can see it both ways. My first reading was as yours. But then I rewatched to see how clearly he distinguishes long COVID from 'CFS' at the...
    Post by: adambeyoncelowe, Feb 19, 2021 at 9:26 AM in forum: Epidemics (including Covid-19)
  7. adambeyoncelowe
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    I'd think if they could pitch it as COVID research, they'd have loads of clinics at least offering to help, who could then recruit patients...
    Post by: adambeyoncelowe, Feb 18, 2021 at 9:42 AM in forum: BioMedical ME/CFS Research
  8. adambeyoncelowe
    Post

    Preprint: Physical phenotype of blood cells is altered in COVID-19, Kubankova et al, 2021

    Ah yes! I remember. Nothing like reinventing the wheel. But if it means we leave no stone unturned, I can live with that. It's very possible we've...
    Post by: adambeyoncelowe, Feb 17, 2021 in forum: Epidemics (including Covid-19)
  9. adambeyoncelowe
    Post

    Preprint: Physical phenotype of blood cells is altered in COVID-19, Kubankova et al, 2021

    Red blood cell deformability was an old lead of Simpson's, I think? That was where the recommendation to take fish oil and evening primrose oil...
    Post by: adambeyoncelowe, Feb 17, 2021 in forum: Epidemics (including Covid-19)
  10. adambeyoncelowe
    Post

    Trisha Greenhalgh on ME/CFS and Long Covid

    Sorry. It's the one TG tweeted about experiences of the long COVID recovery website.
    Post by: adambeyoncelowe, Feb 1, 2021 in forum: General ME/CFS News
  11. adambeyoncelowe
    Post

    Trisha Greenhalgh on ME/CFS and Long Covid

    By the way, it seems the long COVID study can be undertaken by those not on Twitter. The second researcher tweeted her email address for anyone...
    Post by: adambeyoncelowe, Feb 1, 2021 in forum: General ME/CFS News
  12. adambeyoncelowe
    Post

    Trisha Greenhalgh on ME/CFS and Long Covid

    Oh, I see! Maybe I'm on it too? My mum used to be on neo-Nazi group Kombat 18's 'red list' of 'dangerous socialists' or somesuch, so I'm not too...
    Post by: adambeyoncelowe, Jan 29, 2021 in forum: General ME/CFS News
  13. adambeyoncelowe
    Post

    Hypothesis: Mechanisms That Prevent Recovery in Prolonged ICU Patients Also Underlie ME/CFS: 2021, Stanculescu, Larsson and Bergquist

    Nancy Klimas has suggested GCR resistance too.
    Post by: adambeyoncelowe, Jan 29, 2021 in forum: BioMedical ME/CFS Research
  14. adambeyoncelowe
    Post

    Trisha Greenhalgh on ME/CFS and Long Covid

    Block chain blocks all the followers of someone or something you don't like. E.g., you can block everyone who follows Trump or everyone who...
    Post by: adambeyoncelowe, Jan 29, 2021 in forum: General ME/CFS News
  15. adambeyoncelowe
    Post

    BBC: Philippa Day: Benefit errors 'predominant factor' in mum's death

    This is heartbreaking.
    Post by: adambeyoncelowe, Jan 28, 2021 in forum: General disability topics and advocacy
  16. adambeyoncelowe
    Post

    Paul Garner on Long Covid and ME/CFS. BMJ articles.

    All the time!
    Post by: adambeyoncelowe, Jan 26, 2021 in forum: Epidemics (including Covid-19)
  17. adambeyoncelowe
    Post

    Trisha Greenhalgh on ME/CFS and Long Covid

    I'm blocked too. I've never even spoken to her. She must've blocked all the people who are friends with someone (or several someones) who are...
    Post by: adambeyoncelowe, Jan 26, 2021 in forum: General ME/CFS News
  18. adambeyoncelowe
    Post

    Risks for Developing ME/CFS in College Students Following Infectious Mononucleosis: A Prospective Cohort Study, 2020, Jason et al

    Could he have meant those symptoms associated with 'sickness behaviour', or rather, 'sickness response'?
    Post by: adambeyoncelowe, Dec 28, 2020 in forum: BioMedical ME/CFS Research
  19. adambeyoncelowe
    Post

    Are Circulating FGF21 and NT-proBNP promising novel biomarkers in ME/CFS, 2020, Joan Charles Domingo et al

    Very interesting.
    Post by: adambeyoncelowe, Dec 23, 2020 in forum: BioMedical ME/CFS Research
  20. adambeyoncelowe
    Post

    EFNA (European Federation of Neurological Associations) launch e-learning platform for neurology advocates

    D'oh! I see! Still very useful. And a good use of time for those of us (most of us?) with lots of it.
    Post by: adambeyoncelowe, Dec 18, 2020 in forum: Advocacy Projects and Campaigns
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