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  1. Skycloud
    Post

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    I’m not at all surprised that the Journal of the Royal Society of Medicine didn’t publish your response, but I enjoyed it very much. Thank you...
    Post by: Skycloud, Feb 16, 2021 in forum: PsychoSocial ME/CFS Research
  2. Skycloud
    Post

    Paul Garner on Long Covid and ME/CFS. BMJ articles.

    Yes you're right. I was thinking about how contact by patients via tweets etc with George Monbiot over a period of years has paid off recently....
    Post by: Skycloud, Feb 1, 2021 in forum: Epidemics (including Covid-19)
  3. Skycloud
    Post

    Paul Garner on Long Covid and ME/CFS. BMJ articles.

    About PG and CG on breakfast television - I know little about Naga Munchetty, but she strikes me as a serious journalist, or at least I know she...
    Post by: Skycloud, Feb 1, 2021 in forum: Epidemics (including Covid-19)
  4. Skycloud
    Post

    Trisha Greenhalgh on ME/CFS and Long Covid

    At least one of the people in your post has been asked for an email contact now, but I haven't looked at others. [MEDIA]
    Post by: Skycloud, Jan 30, 2021 in forum: General ME/CFS News
  5. Skycloud
    Post

    Science for ME submission to the NICE draft ME/CFS guideline consultation, December 2020

    Thank you so much to everyone who contributed and to those who put so much into drawing up the submission.
    Post by: Skycloud, Dec 31, 2020 in forum: Information for NICE guidelines
  6. Skycloud
    Post

    Workwell Foundation: fundraising

    4% of funds raised, 43 days left. They’re looking to raise $50,000.
    Post by: Skycloud, Dec 4, 2020 in forum: Fundraising
  7. Skycloud
    Post

    Physios for ME

    ^^^ The Physios for ME section begins at around 27.40 minutes into the video
    Post by: Skycloud, Nov 22, 2020 in forum: News from Organisations
  8. Skycloud
    Post

    Almost ten years – is GET going?

    I'm worried about GETset Julie, how will she manage? We're very very selfish indeed putting our needs before hers, and we should all have a long...
    Post by: Skycloud, Nov 15, 2020 in forum: General ME/CFS News
  9. Skycloud
    Post

    The WHO has approved my proposal for removal of "Benign" from "Benign myalgic encephalomyelitis" for ICD-11

    Good news - thank you @Dx Revision Watch.
    Post by: Skycloud, Nov 14, 2020 in forum: General Advocacy Discussions
  10. Skycloud
    Post

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

    Because he’s moved his retirement goalposts.
    Post by: Skycloud, Nov 13, 2020 in forum: PsychoSocial ME/CFS Research
  11. Skycloud
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Thank you Jonathan, that’s just as I thought, that there isn’t any evidence of a process of deterioration in connective tissues due to MCAS or...
    Post by: Skycloud, Sep 22, 2020 in forum: Moderated Threads
  12. Skycloud
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Moved post I’m hesitant to ask this question it seems so basic. What if any changes in relevant connective tissues have been directly and...
    Post by: Skycloud, Sep 22, 2020 in forum: Moderated Threads
  13. Skycloud
    Post

    EDS, hypermobility, and the link, if any, to ME/CFS

    The space between @Jonathan Edwards position, and @Binkie4 and @saltcaramel’s position needs filling with good research. Current research into...
    Post by: Skycloud, Sep 13, 2020 in forum: Fibromyalgia and Connective Tissue Disorders
  14. Skycloud
    Post

    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    Don't wear your smartypants over your tights?
    Post by: Skycloud, Sep 6, 2020 in forum: PsychoSocial ME/CFS News
  15. Skycloud
    Post

    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    Interesting diagram. I know a little bit about how people might read visual shapes and composition (art training). It's interesting that...
    Post by: Skycloud, Sep 6, 2020 in forum: PsychoSocial ME/CFS News
  16. Skycloud
    Post

    A general thread on the PACE trial!

    This so much. I've been reflecting a lot on this recently in relation to ME. The structural spinal issues (and this is not a thread for...
    Post by: Skycloud, Sep 6, 2020 in forum: PsychoSocial ME/CFS Research
  17. Skycloud
    Post

    BPS attempts at psychologizing #LongCovid

    He's trying to save his employers a lot of money: (my bold)
    Post by: Skycloud, Sep 2, 2020 in forum: Epidemics (including Covid-19)
  18. Skycloud
    Post

    Coronavirus - worldwide spread and control

    Health insurance, business insurance, life insurance - there's a lot of insurance products in all this, especially in the US. It's not an area I...
    Post by: Skycloud, Sep 2, 2020 in forum: Moderated Threads
  19. Skycloud
    Post

    Question: Coronavirus & home sewn masks?

    found this: https://www.amazon.co.uk/Mask-Filters/b?node=1939583031
    Post by: Skycloud, Sep 2, 2020 in forum: Epidemics (including Covid-19)
  20. Skycloud
    Post

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    That makes sense to me, Kitty. Potentially that could describe a family member who has an hEDS diagnosis. She experiences subluxations in multiple...
    Post by: Skycloud, Sep 1, 2020 in forum: Moderated Threads
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