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  1. Kalliope
    Post

    Finnish Duodecim ME/CFS Guideline: Draft Published for Consultation

    That was far better than the article from the Finnish Medical Journal.
    Post by: Kalliope, Feb 24, 2021 at 7:25 PM in forum: General ME/CFS News
  2. Kalliope
    Post

    Finnish Duodecim ME/CFS Guideline: Draft Published for Consultation

    Thank you for providing these links, @mango ! It doesn't sound like they're quite there yet. Here are some quotes from the google translated...
    Post by: Kalliope, Feb 24, 2021 at 7:22 PM in forum: General ME/CFS News
  3. Kalliope
    Post

    What symptoms of ME that you personally experience is (a) not shown on your medical file and/or (b) not in the ME literature.

    I haven't yet read this thread, but am looking forward to. I've been pondering about something mentioned by a Long Covid patient in the recent...
    Post by: Kalliope, Feb 24, 2021 at 12:39 PM in forum: Other Symptoms
  4. Kalliope
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    NIH: NIH launches new initiative to study "Long Covid" NIH: Open funding opportunities
    Post by: Kalliope, Feb 24, 2021 at 12:38 AM in forum: Epidemics (including Covid-19)
  5. Kalliope
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    interesting to hear from Hungarian doctors and their take on Long Covid, so thank you for making a summary. I understand you're not very...
    Post by: Kalliope, Feb 23, 2021 at 8:19 PM in forum: Epidemics (including Covid-19)
  6. Kalliope
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    This comment to the article from Frances Ryan has received 1 000 likes so far
    Post by: Kalliope, Feb 21, 2021 at 12:44 PM in forum: Epidemics (including Covid-19)
  7. Kalliope
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    Yahoo!life : A COVID-19 long-hauler details his year of 'hell' Senior Editor Ed Hornick got ill with Covid-19 over 10 months ago and shares his...
    Post by: Kalliope, Feb 20, 2021 at 11:28 AM in forum: Epidemics (including Covid-19)
  8. Kalliope
    Post

    Caught up in Care: Crafting Moral Subjects of Chronic Fatigue, Risor and Lillevoll, 2021

    So true! And it brings so many absurd situations where you don't even know where to start regarding explaining, so you just don't. Like when a...
    Post by: Kalliope, Feb 19, 2021 at 5:42 PM in forum: PsychoSocial ME/CFS Research
  9. Kalliope
    Post

    Caught up in Care: Crafting Moral Subjects of Chronic Fatigue, Risor and Lillevoll, 2021

    Exactly! The focus should be "What is important to YOU?" and "How can we make that happen"? I'd hate to have to follow a set activity...
    Post by: Kalliope, Feb 19, 2021 at 3:15 PM in forum: PsychoSocial ME/CFS Research
  10. Kalliope
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    Here David Strain clarifies this as a misunderstanding and offers an apology:
    Post by: Kalliope, Feb 19, 2021 at 10:54 AM in forum: Epidemics (including Covid-19)
  11. Kalliope
    Post

    Caught up in Care: Crafting Moral Subjects of Chronic Fatigue, Risor and Lillevoll, 2021

    This is how they describe the CFS/ME-team's interdisciplinary approach to "pacing" The patient's stories are sad to read. The shame and self...
    Post by: Kalliope, Feb 19, 2021 at 12:12 AM in forum: PsychoSocial ME/CFS Research
  12. Kalliope
    Post

    The ME Association: Scottish Government Issue Caution for Graded Exercise Therapy in ME/CFS & Post/Long-Covid

    Maybe not the best thread for this question, but does anyone have an overview of which countries that no longer advice CBT/GET as ME treatments?...
    Post by: Kalliope, Feb 17, 2021 in forum: General ME/CFS News
  13. Kalliope
    Post

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    The Science Bit: Apart from the sampling ambiguity, weak measurement, survivor bias, missing data, and lack of control group, the study wasn't...
    Post by: Kalliope, Feb 15, 2021 in forum: PsychoSocial ME/CFS Research
  14. Kalliope
    Post

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    Trial by Error: Hughes-Tuller Comment of Wessely-Chalder CBT Study Rejected by Journal, Posted Here
    Post by: Kalliope, Feb 15, 2021 in forum: PsychoSocial ME/CFS Research
  15. Kalliope
    Post

    News from Scandinavia

    A good opinion piece today from civil engineer and ME patient Benedikte Monrad-Krohn published at forskningno, a news site about research....
    Post by: Kalliope, Feb 15, 2021 in forum: Regional News
  16. Kalliope
    Post

    BPS attempts at psychologizing #LongCovid

    The Norwegian newspaper Bergens Tidende has a paywalled article today about rehabilitation of Covid-19 patients at the institution "Health in...
    Post by: Kalliope, Feb 15, 2021 in forum: Epidemics (including Covid-19)
  17. Kalliope
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    Good to see the following message on exercise and PEM coming across from dr. Daniel Griffith in his latest clinical updated at TWIV (at 19.20 min)...
    Post by: Kalliope, Feb 13, 2021 in forum: Epidemics (including Covid-19)
  18. Kalliope
    Post

    Post-COVID-19 Symptom Burden: What is Long-COVID and How Should We Manage It?, Sykes et al, 2021

    [MEDIA] [MEDIA] [MEDIA]
    Post by: Kalliope, Feb 12, 2021 in forum: Epidemics (including Covid-19)
  19. Kalliope
    Post

    British Medical Association article: Long Covid - we've been here before, 2021, J. Trueland

    Splendid article with interviews with Nina Muirhead, David Strain, Charles Shepherd and Amy Small. Thank you to those who contributed! When it...
    Post by: Kalliope, Feb 12, 2021 in forum: Epidemics (including Covid-19)
  20. Kalliope
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    [MEDIA]
    Post by: Kalliope, Feb 12, 2021 in forum: Information for NICE guidelines
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