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  1. NelliePledge
    Post

    BPS attempts at psychologizing #LongCovid

    Every so often he fishes for a fresh lot of replies from PWME to show to colleagues as examples of how terrible we are
    Post by: NelliePledge, Feb 24, 2021 at 2:21 PM in forum: Epidemics (including Covid-19)
  2. NelliePledge
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Interesting @Kitty i had in my head from somewhere, probably watching OMF presentations 3 or so years ago that the aim was for it to be a...
    Post by: NelliePledge, Feb 23, 2021 at 5:28 PM in forum: BioMedical ME/CFS Research
  3. NelliePledge
    Post

    The theory of effort minimization in physical activity (TEMPA), Cheval, B/ Boisgontier, M (2021)

    Exercise for the sake of it is such a privileged perspective isn’t it. What about people who work in physically demanding jobs filling Amazon...
    Post by: NelliePledge, Feb 23, 2021 at 5:12 PM in forum: Health News and Research unrelated to ME/CFS
  4. NelliePledge
    Post

    Audio recording option set to be introduced for all PIP assessments, says DWP Feb 2021

    Given they lose such a high percentage of tribunals so have to pay the benefits and the cost of taking the case to tribunal, the approach of...
    Post by: NelliePledge, Feb 23, 2021 at 4:40 PM in forum: Work, Finances and Disability Insurance
  5. NelliePledge
    Post

    CDC patient toolkit

    Yes we always have to take a step back when reviewing content about MECFS aimed at the general public or MECFS patients generally remembering that...
    Post by: NelliePledge, Feb 22, 2021 at 4:44 PM in forum: BioMedical ME/CFS News
  6. NelliePledge
    Post

    Covid-19 vaccinations

    I got a text from GP surgery and sorted booking by phone just as I did for flu in the autumn, no letter received
    Post by: NelliePledge, Feb 22, 2021 at 4:24 PM in forum: Epidemics (including Covid-19)
  7. NelliePledge
    Post

    Covid-19 vaccinations

    Thanks for the laugh
    Post by: NelliePledge, Feb 22, 2021 at 4:23 PM in forum: Epidemics (including Covid-19)
  8. NelliePledge
    Post

    Audio recording option set to be introduced for all PIP assessments, says DWP Feb 2021

    Good point about what happens in practice @Wonko i asked in advance for my ESA assessment in 2018 to be recorded but when I arrived for the...
    Post by: NelliePledge, Feb 22, 2021 at 1:41 PM in forum: Work, Finances and Disability Insurance
  9. NelliePledge
    Post

    ME/CFS facts to help with employment

    One way of redesigning the role to reduce the impact on your boss might be if you have another maybe relatively new team member who has potential...
    Post by: NelliePledge, Feb 22, 2021 at 1:18 PM in forum: Work, Finances and Disability Insurance
  10. NelliePledge
    Post

    ME/CFS facts to help with employment

    I think you’re absolutely right to avoid tiredness as a description. I think having no energy or charge on battery is more likely to be perceived...
    Post by: NelliePledge, Feb 22, 2021 at 1:10 PM in forum: Work, Finances and Disability Insurance
  11. NelliePledge
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    As I understood his response to @Robert 1973 rather than having his mind changed by anyone Dr Strain explained he already didn’t think GET...
    Post by: NelliePledge, Feb 22, 2021 at 12:53 PM in forum: Epidemics (including Covid-19)
  12. NelliePledge
    Post

    Insights from Invasive Cardiopulmonary Exercise Testing of Patients with ME/CFS, 2021, Joseph et al

    I would hope they are not talking about PACE style GET. Surely they have some knowledge of the history and its disappointing they have not...
    Post by: NelliePledge, Feb 21, 2021 at 9:56 PM in forum: BioMedical ME/CFS Research
  13. NelliePledge
    Post

    Chronic Illness: The Case of Chronic Fatigue Syndrome-Myalgic Encephalomyelitis, 2021, Jason et al

    Apparently the full thing is available from the authors in pdf if anyone is interested to get a copy
    Post by: NelliePledge, Feb 19, 2021 at 3:26 PM in forum: General ME/CFS News
  14. NelliePledge
    Post

    ME/CFS facts to help with employment

    If you don’t live too far from your office and able to drive if there’s parking considering asking for a space. Maybe involved if they say you...
    Post by: NelliePledge, Feb 19, 2021 at 3:02 PM in forum: Work, Finances and Disability Insurance
  15. NelliePledge
    Post

    ME/CFS facts to help with employment

    Yes my pension was affected from the decade at 85%. I only went to 15 hours for a year or so before retiring early and that didn’t affect my...
    Post by: NelliePledge, Feb 19, 2021 at 2:53 PM in forum: Work, Finances and Disability Insurance
  16. NelliePledge
    Post

    ME/CFS facts to help with employment

    I think the meetings in person or in the office definitely depends on your organisation. I worked in a large organisation my team were based in...
    Post by: NelliePledge, Feb 19, 2021 at 2:39 PM in forum: Work, Finances and Disability Insurance
  17. NelliePledge
    Post

    ME/CFS facts to help with employment

    Oh gosh yes that AFME booklet was what I used because I didn’t know any better. I remember the example in there of flexibility was someone who...
    Post by: NelliePledge, Feb 19, 2021 at 11:29 AM in forum: Work, Finances and Disability Insurance
  18. NelliePledge
    Post

    ME/CFS facts to help with employment

    Some things I had as reasonable adjustments over the years (gradual onset ME meant I was undiagnosed for at least 7 years and I retired early 3...
    Post by: NelliePledge, Feb 19, 2021 at 11:20 AM in forum: Work, Finances and Disability Insurance
  19. NelliePledge
    Post

    ME/CFS facts to help with employment

    I think there will be some useful material on ME association what is ME on the website - it is based on the purple book...
    Post by: NelliePledge, Feb 19, 2021 at 10:47 AM in forum: Work, Finances and Disability Insurance
  20. NelliePledge
    Post

    Caught up in Care: Crafting Moral Subjects of Chronic Fatigue, Risor and Lillevoll, 2021

    Great post @Woolie. Put aside time for joy - yes seems ableist. Who’s to say that for me, where things are at the moment, several hours spaced...
    Post by: NelliePledge, Feb 19, 2021 at 10:29 AM in forum: PsychoSocial ME/CFS Research
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