1. Guest, the 'News in Brief' for the week beginning 11th January 2021 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Search Results

Search Again
Page 1 of 10
  1. Gecko
    Post

    United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial

    Yep I'm a member and sometimes volunteer. And yes keeping an eye but do always feel welcome to drop our communications officer Elyane a line on...
    Post by: Gecko, Jan 19, 2021 at 8:16 PM in forum: Health News and Research unrelated to ME/CFS
  2. Gecko
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    Sorry for slow reply, been attempting to remain off duty over the break. Unfortunately this isn't something we've had capacity to advocate around...
    Post by: Gecko, Jan 5, 2021 in forum: Epidemics (including Covid-19)
  3. Gecko
    Post

    UK - NICE guideline on Long Covid to be produced

    Ah yes good spot Andy.
    Post by: Gecko, Dec 18, 2020 in forum: Epidemics (including Covid-19)
  4. Gecko
    Post

    UK - NICE guideline on Long Covid to be produced

    They do also say: Still, I can't comprehend why it's fine to mention POTS in the guideline but ME is out of bounds.
    Post by: Gecko, Dec 18, 2020 in forum: Epidemics (including Covid-19)
  5. Gecko
    Post

    UK - NICE guideline on Long Covid to be produced

    So no Lynne Turner-Stokes or Trisha Greenhalgh - wonder why Greenhalgh said she and Turner-Stokes were on the guideline committee... Trudie...
    Post by: Gecko, Dec 18, 2020 in forum: Epidemics (including Covid-19)
  6. Gecko
    Post

    BMJ editorial: Updated NICE Guideline on chronic fatigue syndrome, 2020, Stokes and Wade

    Not sure if anyone has yet pointed out on this thread that Turner Stokes is on the NICE Long Covid committee... :banghead: Edit to add evidence:...
    Post by: Gecko, Dec 17, 2020 in forum: General ME/CFS News
  7. Gecko
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Just to say that this is exactly what they did with comments on the scope 2 years ago. If you look at the scope consultation document you'll then...
    Post by: Gecko, Dec 13, 2020 in forum: Information for NICE guidelines
  8. Gecko
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Thanks for posting Andy. Super proud to have worked alongside a fab bunch of people at #MEAction UK to make this change happen, and for the many...
    Post by: Gecko, Dec 11, 2020 in forum: Information for NICE guidelines
  9. Gecko
    Thread

    Seeing the big picture: ME, Fibromyalgia, MUS, FND and Long Covid. Talk with Diane O'Leary, Sheffield ME & Fibro Group. 20 November 2020

    Sorry for posting this so late! 2:30pm Friday 20th November Dr Diane O'Leary, philosopher and bioethicist is giving an online talk hosted by...
    Thread by: Gecko, Nov 19, 2020, 27 replies, in forum: General ME/CFS News
  10. Gecko
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    Really pleased to have been able to work with #MEAction to get some better coverage in the Guardian (of all places) around ME. Thank you...
    Post by: Gecko, Nov 19, 2020 in forum: Epidemics (including Covid-19)
  11. Gecko
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    @Suffolkres it's in the supporting documentation here: https://www.nice.org.uk/guidance/gid-ng10091/documents/supporting-documentation Parts of...
    Post by: Gecko, Nov 18, 2020 in forum: Information for NICE guidelines
  12. Gecko
    Post

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

    :yuck::banghead:
    Post by: Gecko, Nov 13, 2020 in forum: PsychoSocial ME/CFS Research
  13. Gecko
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    My reading is that CBT is still an entirely optional adjunct (e.g. non essential) therapy. However I take your point that what Symptom...
    Post by: Gecko, Nov 12, 2020 in forum: Information for NICE guidelines
  14. Gecko
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Just to clarify that CBT is not part of the management plan as defined in recommendation 1.5.2 (page 12), nor is physical activity, but physical...
    Post by: Gecko, Nov 11, 2020 in forum: Information for NICE guidelines
  15. Gecko
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I imagine they are pretty pissed off that he would use a position he no longer has to claim expertise and in doing so undermine all the work he...
    Post by: Gecko, Nov 10, 2020 in forum: Information for NICE guidelines
  16. Gecko
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    #MEAction press release sent out yesterday:...
    Post by: Gecko, Nov 10, 2020 in forum: Information for NICE guidelines
  17. Gecko
    Post

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Absolutely this. Well said @Andy
    Post by: Gecko, Nov 9, 2020 in forum: Information for NICE guidelines
  18. Gecko
    Post

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Yes! This will be published on the NICE website along with the draft. It's normally a table in which you have to say what document you're...
    Post by: Gecko, Nov 9, 2020 in forum: Information for NICE guidelines
  19. Gecko
    Post

    UK - NICE guideline on Long Covid to be produced

    I've asked NICE for this but not received a reply.
    Post by: Gecko, Nov 6, 2020 in forum: Epidemics (including Covid-19)
  20. Gecko
    Post

    Preventing Post Exertional Malaise - online talk with Staci Stevens and Dr Mark Van Ness - Thurs 22nd Oct 2:30pm

    Thank you @Trish. Though gotta say most of this not me - Elyane, our communications officer, is doing an incredible amount at the moment, along...
    Post by: Gecko, Oct 24, 2020 in forum: General ME/CFS News
Showing results 1 to 20 of 194 Next >
Search Again
Page 1 of 10