Yes, you are right they listed NICE in the optional PEM group. I assume they did that because while the 2007 NICE guidelines said post-exertional...
IMO, broad inclusion criteria that have no clinical rationale for creating the class beyond "medically unexplained chronic fatigue" go beyond what...
I agree that inclusion criteria need to make sense in terms of the treatment strategies. I appreciate that a broad strategy across diagnoses might...
So does this mean it would be appropriate to select a cohort based strictly on the basis of shortness of breath to test an asthma treatment and...
I think we'll just have to agree to disagree Its difficult for me to imagine that it would be scientifically legitimate to cast the research net...
I agree that use of bad methodology like unblinded studies with subjective outcomes is a genuine scientific problem. But selecting the wrong...
I don't think it's quite that simple. I am very close to a longhauler whose most challenging symptoms are POTs and brain fog. But it's not clear...
They classify definitions as chronic fatigue (no PEM), CFS (PEM optional) and ME (PEM and other symptoms required). Oxford was classified as a...
youtube link to today's presentation [MEDIA]
I meant to post the links to the conference, which is now on demand, at least for those who registered. I don't know if you can register after the...
Not sure what happened to that image. The FAQ question and response on the slides were as follows: Q: Is it [LongCovid] the same as ME A: There...
Yea, I get that. Analogy to current US national politics - I am not surprised but still stunned. Are the draft LongCovid guidelines also being...
I'm not sure where to post this but want to highlight for those giving input/feedback on NICE guidelines a discussion in a BMJ Live LongCovid...
The US ME/CFS Clinician Coalition has released a website for medical providers with information to help them deliver better care for people with...
The Workwell Methods paper said this about maximal effort - interesting this list does not include the 85% of age-predicted maximum described above.
Good summary from Mark Vink tweet to Kamran Abbas - guessing that should be abbassi? [MEDIA]
Some interesting studies were discussed. But its important to note that NIH's COVID strategy covers testing, vaccines, treatment of acute COVID...
CDC gave an update on its systematic treatment review during today's (Aug 11) NIH interagency meeting. In a nutshell, their evidence review is...
If I remember correctly, the CDC has published one paper so far - this 2017 paper, which was mostly a methods paper but discussed some findings as...
Thanks for posting, @Sly Saint. I was surprised to see this now given that the adult Multi-site study's data collection is done or at least near...
Separate names with a comma.