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  1. dangermouse
    Post

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Huge thanks to all who have contributed and advocated for pwme. I’m not well so can’t be around much but I do appreciate everything you’ve all...
    Post by: dangermouse, Nov 9, 2020 in forum: Information for NICE guidelines
  2. dangermouse
    Post

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Similar thing happened to me. A CFS clinic called it pacing but encouraged baseline to do no matter how ill I felt, then increase by ten percent...
    Post by: dangermouse, Nov 9, 2020 in forum: Information for NICE guidelines
  3. dangermouse
    Post

    The ME Show - series two

    Very sad news.
    Post by: dangermouse, Nov 6, 2020 in forum: General ME/CFS News
  4. dangermouse
    Post

    DecodeME - UK ME/CFS DNA study underway

    Thanks. I just want to make sure I did it right and that any emails don’t go into spam etc. Some of my family members have registered to be part...
    Post by: dangermouse, Jun 27, 2020 in forum: BioMedical ME/CFS News
  5. dangermouse
    Post

    DecodeME - UK ME/CFS DNA study underway

    I’ve registered, do you get a confirmation email? Just wondering.
    Post by: dangermouse, Jun 27, 2020 in forum: BioMedical ME/CFS News
  6. dangermouse
    Post

    DecodeME - UK ME/CFS DNA study underway

    Brilliant news. I’ve signed up. Thanks to everyone who made this happen.
    Post by: dangermouse, Jun 23, 2020 in forum: BioMedical ME/CFS News
  7. dangermouse
    Post

    Using our experience to help deal with isolation

    I saw a thread on Twitter (but forget completely who it was by) that was a pwME who was sharing tips for living in isolation, it was really...
    Post by: dangermouse, Mar 17, 2020 in forum: Advocacy Projects and Campaigns
  8. dangermouse
    Post

    Anyone have trouble writing by hand?

    I’ve had problems with writing for many years. I find it really embarrassing at times.
    Post by: dangermouse, Feb 23, 2020 in forum: Lifestyle Management
  9. dangermouse
    Post

    ME advocates & groups you can endorse (=vote for) in the WegoHealth awards 2019

    Just catching up .... congratulations & extremely well deserved. Well done.
    Post by: dangermouse, Feb 20, 2020 in forum: General ME/CFS News
  10. dangermouse
    Post

    Do you get a lot of heat in your head with a ME headache?

    I get migraines often. Long lasting. Always on left side with aura. The pain is in head, eye, sinuses, jaw, teeth, neck, shoulder and arm. I...
    Post by: dangermouse, Feb 20, 2020 in forum: Pain and Inflammation
  11. dangermouse
    Post

    Using cognitive behaviour therapy techniques with people who hold delusional beliefs : Cox - Oct 2019

    If only :whistle:
    Post by: dangermouse, Feb 20, 2020 in forum: Health News and Research unrelated to ME/CFS
  12. dangermouse
    Post

    Trial By Error: CBT and Irritable Bowel Syndrome

    Surprise surprise. It just gets better. I should be shocked but I’m not, I’ve recently been offered hypnotherapy .. yup.
    Post by: dangermouse, Feb 20, 2020 in forum: Health News and Research unrelated to ME/CFS
  13. dangermouse
    Post

    Understanding persistent physical symptoms: Conceptual integration of psychological expectation models and predictive processing accounts, 2020, Kube

    Yes.
    Post by: dangermouse, Feb 20, 2020 in forum: Health News and Research unrelated to ME/CFS
  14. dangermouse
    Post

    How to explain the 'fatigue' of ME/CFS to non-sufferers - comparisons they could understand

    It's always the same for me - lower energy and weakness. When bad, add to the mix a feeling of being really sick (as in unwell, food poisoning or...
    Post by: dangermouse, Dec 24, 2019 in forum: Post-Exertional Malaise, Fatigue, and Crashes
  15. dangermouse
    Post

    How to explain the 'fatigue' of ME/CFS to non-sufferers - comparisons they could understand

    Pre ME - I had severe food poisoning whist on holiday abroad. I was so weak I had to lie on the floor at the front of the aircraft on flight home....
    Post by: dangermouse, Dec 23, 2019 in forum: Post-Exertional Malaise, Fatigue, and Crashes
  16. dangermouse
    Post

    Psychiatry Advisor: Addressing depression in ME/CFS, 2018, Cindy Lampner

    Just a point of interest as to how mood can be affected etc: A good friend recently had a bereavement, she is normally one of the happiest and...
    Post by: dangermouse, Dec 23, 2019 in forum: PsychoSocial ME/CFS News
  17. dangermouse
    Post

    Psychiatry Advisor: Addressing depression in ME/CFS, 2018, Cindy Lampner

    It's difficult to explain. Especially with a fogged up mind .. but I'll try: I don't get what I understand of as clinical depression, I tend to...
    Post by: dangermouse, Dec 23, 2019 in forum: PsychoSocial ME/CFS News
  18. dangermouse
    Post

    Psychiatry Advisor: Addressing depression in ME/CFS, 2018, Cindy Lampner

    This. How is it not obvious? Who are these people? It’s not rocket science is it. :mad:
    Post by: dangermouse, Dec 22, 2019 in forum: PsychoSocial ME/CFS News
  19. dangermouse
    Post

    PEM is associated with greater symptom burden and psychological distress in patients ... with CFS (2019) May, Fletcher, Klimas et al.

    I’ve not read the article, what stands out to me is: We (ME patients on forum(s)) are aware of PEM being a hallmark and telltale factor of this...
    Post by: dangermouse, Dec 22, 2019 in forum: PsychoSocial ME/CFS Research
  20. dangermouse
    Post

    Swollen area on upper thigh

    Hi everyone, I have good news. I finally (and fortunately, as my scan results were going to be left to be reported on for another week till I...
    Post by: dangermouse, Dec 21, 2019 in forum: Pain and Inflammation
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