:whistle: indeed! :)
I'd love one of these to monitor variation in my condition as I try out new things. Quite expensive, at 359 Euros. Here's the product.
Just stumbled across this:
A surprising claim. What do we make of it?
Sorry to hear you've been so ill, @Graham, and have been treated like crap in hospital. I hope you can start to make up lost ground.
Maybe this question and its answer needs to be on the FAQs page, @Andy - I imagine a lot of people will be wondering that now.
Great to see the continued support of Carol Monaghan for PwME! She's great.
Any updates on sign-ups, @Andy? Are they continuing to come in?
Very impressed at all these patient-centred aspects of DecodeME!
Do we have any local UK prevalence figures that we trust?
I've been shielding since March but my boiler's annual service is due and I'm worried...
I haven't been going anywhere where people are, but in case I every do, I've just ordered a cotton mask online to try, and I'll order more if I...
Well done, @Andy! Great job there. I hope it hasn't tired you out too much.
I registered for the above and got this email in reply:
@Andy, how can people who aren't registered with FB submit a question?
Do I understand...
Details now posted here:
I have a piece of card taped over my laptop camera so that I'm never accidentally visible! :)
@Andy, is it possible to set things up so that, by default, people's videos and mics are off? Otherwise, people watching in their jimjams might...
Sorry - Miranda retweeted it but I can't see how to pick that up.
I hadn't realised - Miranda Hart (2.3m followers!) tweeted about DecodeME last week:
Edit - sorry, she retweeted this but I don't know...
As a leaflet, it's designed to be printed onto paper, so I think it's fair enough. But I wonder if there needs to be something designed for phones?
Just curious - why is that bad?
I don't think *any* patients in the UK will have been diagnosed by the CCC or IOM criteria. I think the NHS only uses the NICE criteria. I'm...
Considering that the project hasn't had its formal launch yet - just its funding announcement - I think it's doing incredibly well.
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