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  1. TigerLilea
    Post

    Overdosed with coffee - crashed really badly.

    I can not drink regular coffee, otherwise I get really bad panic attacks. Me and caffeine are not friends.
    Post by: TigerLilea, Dec 7, 2019 at 2:54 AM in forum: Post-Exertional Malaise, Fatigue, and Crashes
  2. TigerLilea
    Post

    UK: Mentally ill 'spend months on hidden waiting list'

    Here in BC we only have access to psychiatrists through our medical system. If you want to see a psychologist you have to pay privately. I was...
    Post by: TigerLilea, Dec 5, 2019 at 8:34 PM in forum: Health News and Research unrelated to ME/CFS
  3. TigerLilea
    Post

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (2019) Bragée et al

    I read on another forum that Dr Cheney stopped emailing with patients back in 2016.
    Post by: TigerLilea, Dec 3, 2019 in forum: Moderated Threads
  4. TigerLilea
    Post

    Pain in ME–what helps you and what can I do?

    @lunarainbows It sounds like it could be carpal tunnel syndrome. Have you tried splinting your wrist? Mine bothers me when I'm sleeping so I wear...
    Post by: TigerLilea, Nov 27, 2019 in forum: Post-Exertional Malaise, Fatigue, and Crashes
  5. TigerLilea
    Post

    Efficacy of Korean red ginseng (Panax ginseng) for middle-aged and moderate level of chronic fatigue patients, 2019, Sung et al

    I knew this was junk science as soon as I saw that they referred to it as 'chronic fatigue'.
    Post by: TigerLilea, Nov 24, 2019 in forum: Health News and Research unrelated to ME/CFS
  6. TigerLilea
    Post

    Abnormalities in the urine of people with ME/CFS? A clinician asks for feedback

    The only time I notice an odour with my urine is when I eat asparagus.
    Post by: TigerLilea, Nov 23, 2019 in forum: General ME/CFS News
  7. TigerLilea
    Post

    Very quick survey on anti inflammatories

    Kefir has some probiotics that do establish themselves within the gut. However, it has to be homemade kefir - not the stuff you buy off the shelf...
    Post by: TigerLilea, Nov 20, 2019 in forum: Other: Methylation; B12; Glutathione; GcMAF
  8. TigerLilea
    Post

    Very quick survey on anti inflammatories

    Most of the off-the-shelf probiotic supplements do NOT take up residence in your gut. Like yogurt, you have to use daily to get any lasting benefit.
    Post by: TigerLilea, Nov 20, 2019 in forum: Other: Methylation; B12; Glutathione; GcMAF
  9. TigerLilea
    Post

    Action for ME: GP home visits under threat

    Doctors haven't done home visits in decades where I live. You either have to make an appointment and go into their office, go to a walk-in clinic,...
    Post by: TigerLilea, Nov 20, 2019 in forum: General disability topics and advocacy
  10. TigerLilea
    Post

    Very quick survey on anti inflammatories

    Some people with arthritis do notice that their pain levels go down when taking turmeric supplements over time.
    Post by: TigerLilea, Nov 20, 2019 in forum: Other: Methylation; B12; Glutathione; GcMAF
  11. TigerLilea
    Post

    Trying to schedule different meds etc is a pain in the butt.

    Have you tried changing your diet? You need to figure out what your trigger foods are for reflux. Also, don't eat three to four hours before...
    Post by: TigerLilea, Nov 6, 2019 in forum: Lifestyle Management
  12. TigerLilea
    Post

    Concerns about craniocervical instability surgery in ME/CFS

    I see that Dr Alison Bested is included in the list of doctors who collaborated on this report. She is the Canadian doctor who was responsible for...
    Post by: TigerLilea, Nov 5, 2019 in forum: Moderated Threads
  13. TigerLilea
    Post

    Sleep may trigger rhythmic power washing in the brain

    I watched a programme on TV about this earlier this year.
    Post by: TigerLilea, Nov 1, 2019 in forum: Health News and Research unrelated to ME/CFS
  14. TigerLilea
    Post

    Anyone any experience with probiotics?

    If you use the same probiotic supplement all of the time instead of rotating them every few weeks, it can cause an imbalance within your microbiome.
    Post by: TigerLilea, Oct 31, 2019 in forum: Treating the Microbiome
  15. TigerLilea
    Post

    Article: Canada - After long-awaited recognition, research begins in earnest around chronic fatigue | CBC News Oct 2019

    CBC have now updated the page and corrected the title of the article. :thumbup:
    Post by: TigerLilea, Oct 23, 2019 in forum: BioMedical ME/CFS News
  16. TigerLilea
    Post

    Odd Sjogren’s results and medication reactions

    SS-A or SS-B antigen.
    Post by: TigerLilea, Oct 23, 2019 in forum: Immune: Autoimmune and Mast Cell Disorders
  17. TigerLilea
    Post

    Odd Sjogren’s results and medication reactions

    I tested positive for Sjogren's, yet I don't have any of the symptoms you would expect to see with it. I have an appointment with a Hematologist...
    Post by: TigerLilea, Oct 23, 2019 in forum: Immune: Autoimmune and Mast Cell Disorders
  18. TigerLilea
    Post

    Open UK: Bath: Understanding how people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome utilise data from emerging sensing technologies.

    Isn't this a bit late? as the study was being done between August and October 2019.
    Post by: TigerLilea, Oct 20, 2019 in forum: Recruitment into current ME/CFS research studies
  19. TigerLilea
    Post

    Naltrexone restores impaired transient receptor potential melastatin 3 ion channel function in NK cells from ME/CFS patients, Cabanas et al, 2019

    Is it just me, or is that description more likely to be someone with FM rather than ME? I get muscle pain but it stops within seconds of stopping...
    Post by: TigerLilea, Oct 19, 2019 in forum: BioMedical ME/CFS Research
  20. TigerLilea
    Post

    Non-Allergic Rhinitis

    I have suffered for years with sinus headaches, runny nose believed to be from allergies, ear aches, coughing and clearing my throat a lot. It...
    Post by: TigerLilea, Oct 19, 2019 in forum: Immunological
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