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Search Results for Query: pace trial

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  1. Maat
    Post

    United Kingdom: Science Media Centre (including Fiona Fox)

    ...here. " The research referred to in the debate became the PACE trial! We await the production by the Government of the Delivery plan (also...
    Post by: Maat, Apr 20, 2024 at 7:12 AM in forum: News from organisations
  2. Cinders66
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    The very severely affected case In the news is in Lancashire. BACME list 2 services for Lancashire - one is called CENTRAL LANCASHIRE MOVING WELL...
    Post by: Cinders66, Apr 15, 2024 at 8:59 AM in forum: News from organisations
  3. bobbler
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    of course she is pro-GET Looks like she would need to change the name of her company from 'Vitality' otherwise her bio on: Our team — Vitality...
    Post by: bobbler, Apr 15, 2024 at 2:46 AM in forum: News from organisations
  4. Hutan
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    ...as it is possible to be. Bavinton, Darbishire, White, 2004, PACE trial GET for CFS Manual for Therapists...
    Post by: Hutan, Apr 15, 2024 at 2:37 AM in forum: News from organisations
  5. FMMM1
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    As per my post above, I'm not aware of a (large/large enough) rare variant study i.e. by Ron Davis or anyone else. NIH - we'll perhaps know what...
    Post by: FMMM1, Apr 12, 2024 in forum: General ME/CFS news
  6. Maat
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    ...have the MRC and NIH taken us for fools as well? Bit like the PACE trial largest study in the world on ME/CFS. Because even that's not...
    Post by: Maat, Apr 12, 2024 in forum: General ME/CFS news
  7. bobbler
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Now I've cleaned up my accidental mulching another quote I was pondering with the posted intended I'm going to insert a quote from the paper I'm...
    Post by: bobbler, Apr 12, 2024 in forum: ME/CFS research news
  8. bobbler
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    there is quite a simple thing going on here the problem with the old guideline on CFS could be summarised that they were treating a serious...
    Post by: bobbler, Apr 12, 2024 in forum: ME/CFS research news
  9. Amw66
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    ...complaint. The psychiatrist 'treating' Carla was linked to PACE trial crew & involved in the inception of the disastrous 'liaison psychiatry'...
    Post by: Amw66, Apr 11, 2024 in forum: General ME/CFS news
  10. Kitty
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I'm beginning to think we need another study. So: Group A uses up however much of their available resources are required to fill in all this...
    Post by: Kitty, Apr 10, 2024 in forum: ME/CFS research news
  11. Maat
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    1. Activity pacing (like the APT arm of the PACE trial found to have no beneficial effect on it's own). In 2011 Bath was offering activity...
    Post by: Maat, Apr 10, 2024 in forum: ME/CFS research news
  12. RaviHVJ
    Post

    NEWS: Chairman Bernie Sanders Releases Long COVID Moonshot Legislative Proposal

    ...the BPS crowd is that their research is relatively cheap. The PACE trial was £5 million, the recent NIH study was $8 million, and most of that...
    Post by: RaviHVJ, Apr 10, 2024 in forum: Long Covid news
  13. bobbler
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Another thing that strikes me as worth looking into / considering , having read the Crawley et al (2013) inc P D White paper (who found no result...
    Post by: bobbler, Apr 9, 2024 in forum: ME/CFS research news
  14. bobbler
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    well that is what they put on it as their suggestion. But of course the only thing the actual research was doing: Trial Report - Exploring the...
    Post by: bobbler, Apr 9, 2024 in forum: ME/CFS research news
  15. Maat
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    ...make patients worse. " It's almost as if the CMO report and PACE trial didn't happen, and we've time-warped back to 2001 at least in terms of...
    Post by: Maat, Apr 8, 2024 in forum: ME/CFS research news
  16. bobbler
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    ...rest had issues. What were the actual raw data measures on the PACE trial that can relate to physical function - objective and subjective. and...
    Post by: bobbler, Apr 8, 2024 in forum: ME/CFS research news
  17. Maat
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I think the purpose of the 2023 and 2024 papers was to update the earlier papers in respect of the use of patient data following on from the GDPR...
    Post by: Maat, Apr 8, 2024 in forum: ME/CFS research news
  18. bobbler
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    ...in clinics, which was different to what was found in the PACE trial. So suggested 'urgent measures of delivery in clinics were needed' on the...
    Post by: bobbler, Apr 8, 2024 in forum: ME/CFS research news
  19. Maat
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    That's the slight of hand they pull though @Trish They teach you about establishing your baseline, staying below your energy envelope, but in...
    Post by: Maat, Apr 8, 2024 in forum: ME/CFS research news
  20. Trish
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I'm so sorry this happened to you. It's shocking but sadly not surprising. Gladwell should not be involved in developing new services if he's...
    Post by: Trish, Apr 8, 2024 in forum: ME/CFS research news
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