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Search Results for Query: Paediatric Primer

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  1. Tom Kindlon
    Post

    Information leaflet on ME/CFS and children/young people either for patients or for doctors?

    ...or so of the country with a mail-out that includes the paediatric primer and do the other half in the year or 2. But the primer gets older and...
    Post by: Tom Kindlon, Sep 20, 2023 in forum: Resources
  2. Evergreen
    Post

    Information leaflet on ME/CFS and children/young people either for patients or for doctors?

    How about the first page of this paediatric primer on one side and judiciously chosen excerpts from it on the reverse? Frontiers | Myalgic...
    Post by: Evergreen, Sep 4, 2023 in forum: Resources
  3. Trish
    Post

    News in Brief - June 2022

    ...including the 2021 NICE ME/CFS guideline and the 2017 Paediatric Primer. NHMRC here Thread here Europe Member of the European Parliament...
    Post by: Trish, Jul 3, 2022 in forum: Weekly ME news in brief
  4. Trish
    Post

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer, Rowe et al, 2017

    ...links this article critical of some aspects of the Paediatric Primer which I think it worth reading:...
    Post by: Trish, Mar 7, 2022 in forum: Resources
  5. Hutan
    Post

    News from Doctors with ME

    This is the reference given for that: 4. Carruthers BM, van de Sande MI, De Meirleir KL, et al. 2012. Myalgic encephalomyelitis – adult &...
    Post by: Hutan, Dec 10, 2021 in forum: News from organisations
  6. Amw66
    Post

    United Kingdom: Sussex & Kent ME/CFS Society News

    ...I was thinking of. Comparison with the International paediatric primer Co authored by Nigel Speight is interesting and illustrates how far...
    Post by: Amw66, Aug 22, 2021 in forum: News from organisations
  7. chicaguapa
    Post

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    ...higher on day 2, but she has suspected POTS and the paediatric primer states that PEM can also be caused by orthostatic intolerance, as well as...
    Post by: chicaguapa, Jul 16, 2020 in forum: Post-Exertional malaise and fatigue
  8. Trish
    Post

    News in Brief - May 2020

    Week beginning 4th May 2020 News USA - Solve ME/CFS announced that they've sent out messages to the 3000+ people who pre-registered for their...
    Post by: Trish, May 10, 2020 in forum: Weekly ME news in brief
  9. MEMarge
    Post

    Pervasive refusal syndrome: systematic review of case reports - Otasowie, Paraiso, Bates Apr 2020

    In the paediatric Primer on ME, they say that PRU occurs very rarely, for example in a youngster who has undergone many courses of cancer...
    Post by: MEMarge, Apr 28, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  10. MyalgicE
    Post

    Australia due to get ICC guidelines by 2014

    From Clinicalguidelines.gov.au: Myalgic Encephalomyelitis - Adult & Paediatric: International Consensus Primer for Medical Practitioners 2012...
    Post by: MyalgicE, Nov 29, 2019 in forum: Other guidelines
  11. Simone
    Post

    Applications open for Australian government’s $3m ME/CFS grant

    ...or the International Consensus Criteria (ICC) or the Paediatric Primer criteria, as well as the NIH’s Common Data Elements for participant...
    Post by: Simone, Oct 23, 2019 in forum: ME/CFS research news
  12. Amw66
    Post

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    ...and causes issues - Rowe et al and International paediatric primer suggest recovery over 4-6 years possible and not the 80% rate, If you could...
    Post by: Amw66, Oct 10, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  13. Hutan
    Post

    Online Program for School Nurses - Learn how ME/CFS keeps youth from attending school

    ...knows a bit about ME/CFS, I'd rather they read the Paediatric Primer and spent some time talking to children with ME/CFS and their parents. I...
    Post by: Hutan, Sep 9, 2019 in forum: General ME/CFS news
  14. Dolphin
    Post

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    Thanks. That’s actually a different document from the IACFS/ME Primer. Both are good in my opinion but am not aware of summaries in English, at...
    Post by: Dolphin, Sep 7, 2019 in forum: Resources
  15. Kalliope
    Post

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    Another letter to Fiona Godlee, this time from Alan Gurwitt: [MEDIA] Here's the most recent message sent to Dr Fiona Godlee about the...
    Post by: Kalliope, Sep 7, 2019 in forum: General ME/CFS news
  16. carbonis.dentes
    Post

    Request for comments: NDIS (Australian National Disability Insurance Scheme): evidence of permanency of ME/CFS with NHMRC interim guidelines

    I've added a note about early intervention in the introduction and the summary. Evidence of Permanency for ME/CFS When ascertaining whether a...
    Post by: carbonis.dentes, Jun 11, 2019 in forum: General disability topics and advocacy
  17. carbonis.dentes
    Post

    Request for comments: NDIS (Australian National Disability Insurance Scheme): evidence of permanency of ME/CFS with NHMRC interim guidelines

    I've added a statement on early intervention and an introduction. I've attached a word document too. --- Evidence of Permanency for ME/CFS...
    Post by: carbonis.dentes, Jun 11, 2019 in forum: General disability topics and advocacy
  18. carbonis.dentes
    Post

    Request for comments: NDIS (Australian National Disability Insurance Scheme): evidence of permanency of ME/CFS with NHMRC interim guidelines

    I've added evidence for treatments now and simplified the argument for recovery. Hopefully the argument is strong and more readable too. NHMRC...
    Post by: carbonis.dentes, May 26, 2019 in forum: General disability topics and advocacy
  19. Sly Saint
    Post

    Ros Vallings (NZ) to give series of talks in Ireland - May 2019

    "Dr. Rosamund Vallings Talks The Irish ME/CFS Association is pleased to announce that it has arranged for Dr Ros Vallings, a leading international...
    Post by: Sly Saint, Apr 28, 2019 in forum: Advocacy Projects and Campaigns
  20. Amw66
    Post

    Long Term Follow up of Young People With Chronic Fatigue Syndrome Attending a Pediatric Outpatient Service, 2019, Rowe

    ...a new normal - this is alluded to in the international paediatric primer too, so using scores on function etc is important and helps to...
    Post by: Amw66, Mar 18, 2019 in forum: ME/CFS research
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