Many pwme have tried mestinon to no avail.
Strong or long lasting pain. I have severe M.E. but I don't have pain. More subsets I guess.
Develop a process for generating a strategic plan... Sigh. A process??
Funny.. Thanks for the giggle!!! My own b12 levels are well above normal range due to supplements and I've steadily declined in past 3 years...
Yay for a positive reply!! I thought he came across well, I really think we have to appreciate any pluses that come along.
We so need a diagnostic test. This is a complete and utter circus. I can't take much more of this absolute BS, it actually beggars belief.
@Andy I know it was mentioned above the whole glutamate picture. I'm so interested in his thoughts. I'm severe and klonopin helps me, it helps me...
If that's the case, it sounds like something that would be extremely complicated to treat imho
I'd be glad of treatments in 3 years.. Very glad. I don't really expect a cure.. I'm sorry you are disheartened @Perrier. I think we have to just...
That wasn't the impression he gave at Symposium.. He had identified 5 ME subsets. It seemed that he had alot of work done.
Relieved to hear this explanation. Thank you @Sing
Can anyone tell me if the metabolic trap is still a viable hypothesis or is it gone out the window?
I was impressed with Alain Moreau's presentation. I missed most of the others but he left me with a feeling of optimism.
I agree @strategist...
Disappointed that Jarred Younger can't attend...
I liked the presenter Steven Roberds.. Hopefully he will stay working with us..and actually care enough to push things along.
Thank heavens it was approved... Way too much emphasis on fatigue yet again.. Walter's comment on the marathon runner actually made me break into...
I so hope that act on some of this, that it won't be left aside gathering dust
@rvallee have u any idea when we will know if Alain Moreau's research proposal has been granted funding?
Thanks @rvalee....you always say exactly what u think so I'm delighted that you are impressed...you don't give praise unless it's well justified!!
Good news so damn rare!!
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